The remedy

Hope is a funny thing. It can help you sleep, allow you to smile and laugh when you didn’t think you could, and can even push you out the door and get that bit of fresh air and exercise that you so desperately need.Hope

This has been a weekend filled with tears and stilted conversations and many, many spoken “I love you’s.” My family is scared and sad and feeling helpless and attempting to prepare for the worst….but have decided to say “Fuck this” and instead we’re hoping for the best.

 

My brother has been in the hospital for nearly a week. What we had hoped would be a 3-day stay with one cardiac procedure, has turned into a life or death situation that we were not expecting. My brother’s heart is an anomaly anyway, and we should have known it wanted to throw everyone a little surprise.

Through medicine, we hope the issue will be resolved and the original procedure can take place without a hitch and my big brother will be as well as he can be. This is the hope and the wish and the good thought and the prayer and the good vibe we are putting out into the universe. We expect it to be fulfilled.

So if you have control over these types of things, consider yourself put on notice.

Do NOT disappoint me.

 

Picture this

As I enter the yard, the lawn has been mowed and there are trimmed bushes in front of the house. When I walk into the small, but clean and organized home, there is no trace of dirt on the carpet or dust on the television. The kitchen floor is swept and Mom is at the counter whipping up a batch of cookies. Mom is a tall woman (5’9″ish), thin yet strong. It’s possible the house smells like cigarette smoke, but it probably also smells like chocolate and sugar and a hint of dish soap.

Now fast forward four years.

I walk into the yard with the overgrown bushes and am greeted with a trash bag on the walkway that has been ripped open by animals. When I enter the house, I see a rug coated in dirt and grass, and Mom, now 20 pounds lighter with the look of a frail wounded bird, is sitting in her favorite chair because her body doesn’t allow her to do much more. The kitchen floor is also dirty, and when I open the trash can to throw something away, tiny flies dart out at me as I try to slam the lid back down while covering my face. I can only smell cigarette smoke. Nothing more. Until I go into the spare room where the cat’s litter box is stored. There is no more clean litter and the box is filled with urine and feces. The cat has done the best he could with what he had.

I don’t cry. Not yet.

I sweep the kitchen floor and vacuum the rug while Mom tries on the clothes I bought her for her birthday. I scoop the cat box as best as I can and try to leave the little guy with something until I can get back during my lunch break with fresh litter. I talk to Mom for another minute before I have to leave for work. It’s obvious she’s in pain today. The dark half-moon smudges under her eyes tell me she’s hurting. She doesn’t complain, just states that she hurts. I give her a hug and tell her I’ll call her in a bit before I come back over in the afternoon. I take the trash out on my way to my car, and I have to hold my breath as I open the large trash can. It not only stinks, but maggots drip from inside the cover onto the garage floor. I stuff the bag in and try not to retch.

As I drive the 15 minutes to work, I take several deep breaths. When I get to work, I ask my boss to smell me because I think I smell like smoke and/or cat pee. She tells me I do smell like smoke….and then I cry. This wasn’t a “silent, tears streaming down your face” kind of cry. This was a blubbering, snot-inducing sob, while trying to tell my boss why I was so upset. Mom was actually doing pretty well that day. Her memory was decent and although she was hurting, she could still get up and walk around with her walker.

But…she wasn’t my mom anymore. I’ve known this for several years, but the great leap in those two images, the stark difference in “before” and “after” finally became real to me.  I know she is no longer the baking, clean-freak I grew up with (and became!) but is now an old woman who can no longer care for her home like she used to.

I am the person responsible for cleaning it now.

And I hate it.

But I think she hates it, too.

She always thanks me profusely whenever I go over and for some reason, I always feel a little guilty when she thanks me like that. Admittedly, if my visit is before work, I’m running around her house, cleaning up, not sitting down and chatting much, because I need to get to work (and typically this is after taking my son to school and running around my *own* house getting supper in the crock pot and doing laundry and who knows what else). I’m sure Mom can feel my tension but also understands my “I need to get his done” attitude, because that’s how she always was while I was growing up. I do know Mom appreciates my help, but I also know she’d give anything if she could do it on her own again.

And so would I.

Does that make me selfish or a bad daughter? Probably. But I have to be honest, at least with myself. B_wears_her_heart_on_her_sleeve_by_fangedfemut I also know I need to come to terms with all the changes. Over the past week I have had multiple emotional outbursts, some with tears and others in anger. No one has been immune–my family, my co-workers, my friends. I’ve either yelled at or cried on nearly everyone.  Wearing my heart on my sleeve is an understatement this week. I have felt just so….exposed, with every emotion I have felt being raw, painful.

 

I’m aware that the stress I have felt isn’t just from Mom’s situation but also from other health-related concerns within my family. Yet I have no control over those problems. I can only hope and send good thoughts and say encouraging words, but there’s nothing else I can do. But with my mom? I may not have control over the deterioration of her mind and body, but I can do little things like vacuum or sweep or bring her good food, and I need to take some consolation from those few things I *can* do. I need to give myself a break and not get angry or frustrated when I walk into her home and it’s not like it was a few years ago. This isn’t her fault and I need to stop acting like it is.

I need to remember that Mom is still my mom and just try to forget all the rest.

Sometimes it’s difficult to just “be”

Lately, there have been many moments when I realize that my son really “gets” me. He’s always been one to compliment me and call me beautiful, just like his father does. That’s one thing we try to do in this house is to boost each other up and not tear each other down. (Ok…that’s not really true. We tend to tease each other incessantly, but it’s done with love and if there’s ever any bad feelings, we stop.)

But it seems that just in the past few months, my son has realized a few things about his mother and felt the need to share his observations. “Mom, you seem to be particularly cranky. Did you go for a run today?” Or, “Hmmm….I think you need a treat. You should go buy an iced coffee.”

Then this afternoon, after having an unexpected house full of family and food and fun, I finally sat down beside my boy after everyone had left. My cold was making my head hurt and my eyes sting, but I needed to spend some time with my son. I watched him play a video game and we discussed which was easier while playing, being in first person or third.  As we talked, I started to lose my voice so he entertained me with making his character on Halo do wacky things. (I personally love it when these guys dance.) But after just a few minutes, he quit the game and left the room. I put my feet up and tried to read for a bit. No matter how bad I feel, I typically hate to lie down to nap or just rest. There isn’t enough time in the day to get done everything I want to do, as it is. Being sick doesn’t change that.

But as I tried to read with my eyes watering, my son came back into the room and said, “Here, Mom. Let me tape this to your forehead.” It was an “Out of Order” sign he had made for his computer so no one would touch it. As he placed the sign on my face he said, “There. Isn’t that better?” And as I closed my eyes and put my head back into my chair, it really *was* better. I needed a few minutes to just stop. No reading, no thinking, no doing.DSCN3175

Just being.

And it took an 8-year-old boy to teach me this.

By placing a sign on my forehead.

I’d say little nuggets of wisdom come from all people of all ages. We just need to take the time to listen.