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Shame

I write this blog because it helps me sort out my feelings, my thoughts about my life, and to share my experiences with some folks who either can relate or those who care about me. I do not ask for anything but a few minutes of your time if you are so inclined. But my last post brought gifts from some of you. You read my piece and felt for me and my family’s current situation. Your generosity and kindness was and is appreciated, and I am honored to call many of you my friends. I know you did what you did because you love me and the thought of me hurting in any way made you want to help. And I love you for it. I truly do.

But to be honest? I felt tremendously embarrassed and ashamed afterwards. I didn’t share to “get stuff.” I shared just to show this new thing I was experiencing and how frustrating (and humbling) it can be to eat from a food pantry. After the influx of gifts, I was kind of a mess for a few days until I had therapy. When I explained my dilemma to my therapist, she said something pretty dang profound. “Sometimes, Holly, it is our job to receive.”

*mic drop*

That one sentence changed my perspective on these gifts. I ended up using two gift cards for a trip my son and I had planned from last year. (We drove to Washington, D.C. to look at colleges and we needed snacks, friends.) I did refuse a few offers when I was able to, and others? I put some of the gifts aside for a little later when I know we’ll be more desperate than now.

Do you know what’s really disturbing about all of this? When my son and I went to D.C., we stayed with some old friends, who have become part of my family. My dear friend, a woman I’ve known for 30 years, had asked me about these cassava flour brownies that I made. I said that I got the flour from someone, but I could not say the words out loud, “I got it from the food pantry.” (Which, btw, that’s pretty great to get anything gluten-free from a food bank, and this was from our local high school’s food pantry.) I know for a fact that she would never judge me. Not for a second. Yet I was too ashamed and embarrassed to say that I got it from a food pantry. That shame is so deeply ingrained into me. I just want to starting yelling, “I have a good job, a fucking master’s degree, so don’t look down on me!”

But who is actually turning their nose up at me? Is it you? I don’t think so.

I think it’s me.

I shouldn’t be in this situation. I should be helping people that need an extra hand.

I should be you.

But I’m not. And I’m angry about it.

Then today, I brought this walker up from the basement. When my husband was on a respirator and in a coma back in 2020, this was given to him once he was able to leave the hospital. It was necessary then, so we kept it, hoping we wouldn’t need it for years to come. This morning, my husband’s knee was swollen, his neuropathic feet were hurting, and he was having problems standing up from his living room chair. Before I left for work, he asked me to get the walker from the basement. So I did.

On the drive to work, I couldn’t take a deep breath. I knew I was having an anxiety attack. I was thinking about my husband, my son was home sick, I was missing some friends I haven’t been able to talk to, I was feeling alone and scared…but I just needed to get to work. Once there, I pretended all was good until I couldn’t any more. I asked a colleague if they ever had anxiety attacks (I was pretty sure they had) and asked what they did. They sometimes would just go into the bookstacks and center themselves. So before we opened the library, I went to a section of the stacks, sat on the floor, and sobbed. I couldn’t think. I couldn’t speak. I just sobbed and rocked myself. After a few minutes I was able to stand up and go back to work. A different colleague checked on me and we talked for a few minutes and they let me vent and cry some more, and that was the end of it.

When I was a Trevor Project volunteer, I helped many teens get through anxiety or panic attacks. Often I used the 54321 grounding exercise (name 5 things you see, 4 things you can touch, 3 things you can hear, 2 things you can smell, and 1 thing you can taste–the taste thing is always odd). But while my brain is freaking out, I could not name anything I was seeing because everything was a massive blur. Hell, I couldn’t remember the order of seeing, touching, hearing, etc. But today I learned that sometimes being alone to cry, drinking water, taking a brief walk or finding a place nearby to get a good snack, are all good things to help calm me down to a place where I can function again.

Did I feel a bit embarrassed and ashamed for having this mini breakdown? Oh yeah. I see people every day who have no home, who keep every possession they have in a shopping cart, who only eat what is given to them. And I’m crying over a husband who can’t work and a life that I wasn’t expecting?

Well…yes. I am. Do I wish I could suck it up and just get on with whatever life I have? Yes, yes I do. And somedays I do a great job at it.

But today wasn’t one of those days.

You know what, though? Tomorrow is a new day. So there’s always hope that I’ll function tomorrow, that I’ll be able to get up on time, exercise, eat well, and smile more often than not.

That’s my goal.

How about you? Are you ok? No matter what I’m going through, I’m still here to listen. It’s the least I can do for you, like you’ve done for me. ❤

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Having Enough

Years ago, when my son was a toddler, we were on food stamps and WIC for a short period of time after my husband had been laid off. (If you’re not aware, WIC stands for Women, Infants & Children and is a federally funded supplemental nutrition program for low-income pregnant women and children.) My husband’s unemployment had run out, he was depressed, and he couldn’t find a job. It was a horribly scary time.

Yet even with that kind of stress at home, what really made it unbearable for me, was how I was treated at the grocery store when I used WIC. There was an older woman at the grocery store in the town I worked in, she waited on me and made me feel like absolute garbage. She scoffed when she saw my WIC paperwork, yelled at me when I had something on the counter I wasn’t allowed to get through WIC, and never once looked me in the eye.

I felt humiliated.

I left the store in tears, holding the bag of the few items my child needed to keep growing and thriving. The next time I used WIC, I didn’t go back to that grocery store, but went to a larger one near my home. It was a little better, but not by much. The clerk was closer to my age (I was in my mid-30s at this time), but she was efficient, did what she needed to do, and finished the transaction. There were no extra niceties, but at least she didn’t degrade me.

Now here we are, 15 years later. My son is still a growing boy, but a teenager. My husband is out of work and will be permanently. Although the disability paperwork has been filed, he will not have an income for 1-3 years. There is no WIC or food stamps for us, because in the eyes of the government, I make too much money.

So what do we do? Each day when I go home from work, I pass a local church that has a food bank every Tuesday morning. My husband and I had talked about it, and we both knew how fucking hard this would be. You work your whole life, you try to help others, but when it’s time to go for and accept assistance, it felt…wrong.

The morning he was going to go to the church for the first time, I said to him, “Remember, you’re doing this for your family. You’re doing this because our kid, god help us, is still growing. We are going to survive, damn it, and this is how we do it.” He kept nodding his head, “I know. I know.”

And off he went. I’m sure every food bank has their process and I know each one has slightly different rules. This one is in our town, but many folks who go are not from our town. They drive in from other places, but that’s how they survive. Each person or household is given a box to fill, but you can still only take as much as you need for the number of people in your home. For instance, he picked out 3 potatoes the first visit and 3 oranges, because we have 3 people. It’s been quite a humbling experience for all of us, but especially for my husband.

Each week the items are different, and you have to pick numbers to see how far down the line you are. If you get a low number, you have the better choice of produce or any of the goods. If you have a higher number, it’s often slim pickings by then. But it’s fair.

What’s interesting is the choice of items. This past week there was sliced swiss cheese with the expiration date of that day and yogurt a week past the expiration date. Usually the produce is about to go bad or you might have a few days to eat it. But so far, we’ve made sure nothing has actually gone bad. We’re trying to be creative with whatever food he brings home. He’s made hash browns with a few potatoes or sliced and baked them until they’re like potato chips. We’ve received spring mix a few times and have placed greens in nearly everything to make sure it’s eaten. I feel like I’m living in that commercial with chefs who cook gourmet dishes with food scraps…except without the chefs. We’re not making anything fancy, but we’re trying to make meals and not get sick from them. (I’m not gonna lie, the swiss cheese did taste a little odd, but I figured swiss cheese tastes a little weird anyway so it’s fine!)

But one thing that was seriously sweet about last week’s haul, was this rose. I guess the church gave it to my husband to give to me. I don’t know why, but I don’t care. I kinda love it. I’m not typically one who likes to receive flowers, but honestly, it was just nice to get something….lovely. Something that could brighten my day, even for a moment.

Someday, I hope we’ll get to the other side of this. I’m not sure what kind of shape we’ll be in financially by then, but I’m really trying to find ways of cutting costs. I make my own laundry detergent now, we switched from regular cat litter to these pellets that barns typically use, and I’m always scouring my basement to look for things to sell. This isn’t where I thought we’d be at this age, but shit happens, right?

One thing I know is that if we ever do get to the other side of this…no. WHEN we get to the other side of this, we will donate money or resources to local food banks. Even if some of the food items are a little sketchy, we still accept it with great gratitude. They are truly saving our bacon.

Eat well, my friends, and as always, hugs to you. ❤

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Dreams (and Nightmares) Do Come True

It actually happened.

Two weeks ago, I went on vacation with 4 of my favorite humans. To say we had the time of our lives was an understatement. When you laugh so hard each night that you cry and have a belly ache, you know you are surrounded by people that you not only love, but love spending time with.

We traveled to Belize and had the most amazing time. I can truly say it was the best five days of my life. Things at home were not wonderful while I was gone, but I had to keep telling myself that I just needed to let it go. Mostly I did.

Here are some highlights: saw numerous creatures at the Belize Zoo, including spider monkeys (where I cried because I felt like my brother was there, feeling just as excited to be so close to these lovelies); had a beach day where we all swam in the warm water, drank margaritas on the beach, and played cornhole in our bathing suits; went to the Xunantunich Mayan Ruins with a very informed and funny guide, climbed the massive structure and saw lizards and bats along the way; experienced cave tubing; visited a cacao farm and had a hand in making chocolate; swam under the waterfalls; had a massage (thanks, Trish!); ate delicious dishes and fresh fruit each day; heard and saw so many different types of birds that I’ve never seen or heard before; swam in the pool; went for a run; shopped a little; tried to speak Spanish a teensy bit; and drank and laughed each night.

There are hundreds of more photos that I get to look at each day. I did not take a ton (maybe 100), but thanks to my friends, we had over 500 (probably much more) to look at and do what we want with. Many of the ones I haven’t shared are all of us hanging out at the pool on our last full day in Belize. Looking at photos from that afternoon just gives me such good feelings. We were warm and our bellies full and we were enjoying the water and each other’s company. Hell, that was really every day of the vacation.

I know how lucky I am to have been able to travel to another country, to take a vacation, to spend it with my friends. I know how lucky I am to have these friends (and many others) that I have known for most of my life–over 35 years–and still love them and call them my family. They bring me joy and so much damn laughter.

I knew that when I came back from this dream vacation, I would need to hold onto the memories because life at home was and is hard. I cried the day before we left Belize. I knew that my life wasn’t going to feel this carefree and fun for a very long time.

My husband was not able to work while I was away and is now no longer working at all. Between congestive heart failure and now the neuropathy in his feet due to diabetes, there is no other way around it. Our health insurance ends this month and I will start paying for insurance that isn’t as good through my work, but at least it’s something. We will lose our doctor, our favorite doctor we’ve had for years, because he doesn’t take this new insurance. And now we’ve contracted with a lawyer to help my husband apply for disability. If all goes well, he might be able to receive SSDI (Social Security Disability Insurance)–the thing we’ve been paying for all of our lives–in a year…or two…or three.

We, in short, are all grieving so many things this week.

I’ll be able to look on the bright side of things tomorrow. Or maybe it’ll have to wait another day. Either way, I did have Belize. For that, I will be forever grateful.

Take care of each other, friends. I appreciate you.

Hugs to you all. ❤

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Breaking It Down

In another week, I hope to be hanging with four of my girlfriends in our rented villa in Belize. Sounds absolutely amazing, doesn’t it?!?

I just NEED to get there.

Today my husband and I spent over 4 hours in the emergency room. After three days of high blood pressure and heart palpitations, our doc said it’s best we go to the ER since they can do tests and get results today, compared to doing tests at his office and waiting two days.

But that’s not what happened. When we walked in, we were warned that their computer system was down and no idea when it would be brought back up. We figured we’d stay anyways because they could still do tests…unless you get a medical professional that doesn’t think you need any.

Three hours after we stepped through the doors, my husband is finally seen. Unbelievably, his blood pressure was actually normal at that time. The PA couldn’t see my husband’s records, but knew he had congestive heart failure. He said he might do some tests if he can look into his records. BUT HE COULDN’T, SO WHY BOTHER TO STRING US ALONG?

An hour later, I told my husband we should leave. They were working on discharge papers but weren’t sure how long it would take. I was done. I was angry at the PA, angry at my husband, angry at the world. So we left.

Once we got home, we sat in our driveway and I just cried. I let it all out. I told him how disappointing it is to have to do everything at home (cook, clean, laundry) even though I know he often feels like garbage. But when I get home after a long day and he’s been home, can’t the dishwasher be emptied at least? But I also told him how frustrating dealing with his health is, how we should just pull the pin on this disability thing and he should downgrade to part-time work. We’ll lose our insurance and try to get something in Marketplace we can afford. But it’s all so fucking scary and rage-inducing. We should be in a much better place in our lives, but instead we’re still fucking struggling like we did 25 years ago.

And yet between sobs, I told him I feel guilty of living my life and traveling with my friends, while he stays home, barely living at all. But he told me that he wants me to keep living and traveling, because that’s what I want to do and should keep doing it.

But…our lives include things like this in the shower. (Which, I’m not gonna lie, I hate. I feel like I don’t fit in our shower now, and I feel like the handle is just in my way. Isn’t that the most fucking selfish thing anyone has ever thought?!?) I also ordered husband a cane that should be here this week. It all feels just so…unfair and overwhelming and just plain shitty.

Ten minutes ago I completely melted down by the tremendously overwhelming task of…making my lunch for tomorrow. It’s a salad for fuck’s sake, and I dissolved into a sobbing mess at the thought of trying to cut up chicken to put into it. I alternate between sitting at my kitchen table and typing this, to laying my head down in front of my laptop. It’s really not a pretty sight.

So…I’m listening to ocean waves and trying not to spiral and overthink our future. I’m going to envision the best-case, worst-case and most likely scenario of what the next few years will be. Best-case? My husband’s health stabilizes enough that he can work full-time for now and we keep our insurance. Worst-case scenario? He stops working all together and is denied disability over and over. We not only lose our insurance (and our doctor because he doesn’t take any other insurance now) but must sell our home and move into a small apartment. Or…my husband dies.

Most-likely scenario? I think it’s in between. I am hoping my husband can work part-time. Yes, we’d lose this insurance, but I know we can find something on Marketplace. I think it would be more than what we want to pay (or rather *should* pay), but I’m not sure there’s much we can do about that.

I made Husband promise to not die this week or next week while I’m on vacation. I guess now I just keep on moving forward, right? I know how lucky I am to be able to take this trip with four of my favorite people. Do I wish I wouldn’t have to worry about what was happening at home? Of course. But…I just have to do this. I need a break from my life and I swear, I do know how fortunate I am to get that.

So I’m going to take that break. And I’m going to hope for the best. And when I get home? I’ll keep moving one foot in front of the other and gather forces to try and navigate our current circumstances. We’ll figure it out, right? 

Hugs to all of you. ❤

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Until Your Love Runs Out

“With gratitude, optimism is sustainable.”–Michael J. Fox

I heard Fox say that once in a recent interview. It takes effort for his body not to shake or move due to Parkinson’s Disease, yet he’s still grateful for and optimistic about his life. I immediately found a scrap of paper and wrote this quote down because I knew I’d need it at some point. And now here I am, trying my best to embrace those words.

Your comments, messages, emails, texts and phone calls in response to my last post, was the best explosion of love I have felt in quite some time. I am not only grateful for y’all, but finding others that have been or are currently in the same situation, lightened my stress by just a bit. Thank you. So much!

Because of my blog post, my husband and I had some honest conversations, including his daily fears and what the future will bring. We added to our vision board with our own hopes and also YOUR words of encouragement.

When I asked my son what he wanted on the board, he said to win the Calvin Coolidge Scholarship. This is the one he’s been working really hard on–reading Coolidge’s autobiography, writing 3 essays and 3 short answer questions. I helped him with his resume and he got the two letters of recommendation he needed. The deadline is Thursday, so much of his life will be consumed by this for the next few days. He said, “You know, Mom, I really doubt I’ll get it, but I’m really proud of myself for trying.” I’m so damn proud of him, too. He set a goal and he’s kicking ass trying to achieve it. ❤

We’re feeling some hope this weekend. I was able to buy groceries yesterday and filled the house with healthy foods and now I’m cooking up a storm. I paid most of our bills and with a bit of juggling, should be able to pay the others around their due dates. (I know many of you know this juggling I speak of. We’re basically fucking financial experts, aren’t we?) Today my husband looked at bars for the shower and toilets that are higher than what we have. With help from one of my colleagues, I now have a short list of attorneys we may want to talk to soon about the process of applying for disability, but he’s not at that point quite yet. He has to stop working before he’s even able to apply. I really, really hope that isn’t this year.

But if it is, then we’ll deal with it. Because that’s what we do and what you’d do, too.

For today, though, we’re going to move forward and hope we can continue to keep putting one foot in front of the other. We’re going to listen to this positive potato. (My son gave this to me yesterday as my late Christmas present. I LOVE IT!)

So let’s do our thing, friends. I believe in you, just as much as you believe in me. Let’s keep chugging along until the love runs out.

Hugs for all!

Thank you, One Republic, for letting me borrow and edit your lyrics for my blog post title.

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Trying to Look Ahead…and Failing

Hi friends.

I am struggling.

There is no other way to say it.

I am trying to look to the future to give me some positive vibes. I know I have a lot to look forward to this year–a trip to Belize with four of my best girlfriends, touring colleges in Washington, D.C. while also visiting another one of my favorite humans, watching and preparing my son to apply for colleges all around the northeast. This should be an exciting time.

But while I am at home I feel…stuck? Unmotivated? Sad? Living with and loving someone who has a chronic illness and will eventually die from that illness, is incredibly difficult. There is so much anger to go around–from myself, from my son, and sometimes from my husband. Watching my husband shuffle when he walks, take naps every day because he doesn’t have the energy to do much, and come to terms with the fact that there is only so much he can now do to fix his health is heartbreaking–and honestly rage-inducing.

Here’s the thing: I want my husband to try and enjoy whatever life he has left. Hopefully that will still be 8 or 9 years, but at this rate, I doubt that figure. I know that for him, enjoying his life means he’ll watch films he loves, spend time with our little family, listen to a variety of music, and dream about winter camping. Little things bring him contentment. But to enjoy this life, it also means that he’ll eat basically whatever he wants. And in doing so, his diabetes is not under control and his congestive heart failure symptoms have increased.

This is the part that frustrates me to the nth degree.

Living our lives, no matter how we live them, brings consequences to not just ourselves, but those around you.

I am relying on my partner for not only emotional support but for financial support. And with the many days of work missed and a few unpaid hospital bills, it has created a tremendous stressor in our household.

Our son, a junior in high school, has begun applying for scholarships for college. I set him on this path because every school he’s interested in is out of state and all have hefty price tags. But now he’s become obsessed with applying for the big scholarships, the ones with full tuition that are so dang hard to come by. And I know that that is my fault. I honestly do not know how we will help pay for his schooling.

Currently my son’s main goal after college is to make sure he has a job that can pay his bills. He wants to love what he does but right now that does not seem to be his main concern. He has watched us struggle financially his entire life due to bouts of unemployment, short-term disability, or my choice of career that has never paid what I’m worth. And now that he is on the cusp of adulthood, he will do whatever he can to not live that life.

I am frustrated, scared, and just so unsure of what our future is. I tried to start a vision board for this year. I had ideas a few days ago and now I just feel lost. The one thing I wrote on it was about making and feeding my son healthy meals. Do you know why I wrote that? Because he asked me to feed him well so he could concentrate on his studies, work, applying for scholarships, and to start exercising again. 

Recently I was doing laundry and I told him I would do his laundry for him, too. But later that weekend, I fell in some kind of awful dark place. and I didn’t do the laundry. A few days later he called me while I was at work and asked where his work pants were. That’s when I realized they were still in the hamper because I just couldn’t function that weekend. So? I told him the truth. I said I had a depressed episode (I don’t really know what to call it, but that sounded accurate) and I didn’t do the laundry. Do you know what he said? He said, “Ah. Ok, I get it. That’s fair. I will just wear dirty pants to work. Love you, Mom!”

I love this child with every cell of my being.

Just a month ago I would have turned to running to help with all of these feelings. But I just don’t have it in me to do that right now. I did run one day this week and took a walk on a few others, so I’m moving at least. But something has to change.

I am grateful for my work, because that has become my sanctuary. I get to be with people I care about, I get to help others, and I just feel…useful. I feel like I make a difference. I don’t always know what I should do or how to do things correctly, but thankfully I have a team of people who support me and help me find my way.

If you have ever cared for another individual during their sickness and have felt this helpless and sometimes hopeless, I’d love to hear from you. Or if you have some wise words of encouragement, I’ll take those, too.

Thank you, friends.

Hugs to you. ❤

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Me, Myself and I

 I read a newsletter called Wondermind. It comes to my email inbox three times a week–Monday, Wednesday and Friday. They often have articles I don’t necessarily read, interviews I definitely don’t read, and TikTok videos I feel old to watch. But there are always little tidbits at the beginning of every newsletter that make me reevaluate my mental health or maybe take a step back and look at my day and figure out how to make it better. I like it. A lot.

Last week, one of the newsletters asked this question: What is one aspect of your current life that a younger version of yourself would be excited about? I read this question after having lunch with an old friend. I’ve known this man for over 40 years, but as we ate lunch and talked about our lives, I realized I really only knew the childhood version of him. It kind of astounded me the shit he went through as a young adult and the pain he’s endured as an older one. At one point we discussed how we came to where we are–how did we change our bodies, why did we get into the work we’re in, and what regrets do we have.

So when I read the question, “What is one aspect of your current life that a younger version of yourself would be excited about?”, I knew right away what it was. Or I thought I did.

Seeing this person in the mirror was the first thing I thought of:

This woman just ran 4 miles, negative splits, and had fun doing it. She’s fairly fit, runs for fun and for exercise, and looks half decent. And I love her hair. It’s really pretty. 🙂

Thirty years ago, I could not have run 4 miles or even 1 mile. Probably. I might have been able to but it just wasn’t anything I saw people doing much back then, or really anything I thought I could do. But now? After 13 years of running, I don’t want to stop. There are some days I hate it, but it’s more that I hate going out in the cold or the rain or the wind. But once that run is done? Hot damn, do I feel good!

I think my younger self would be shocked, but ecstatic to see me running. But you know what would really make that 20-year old Holly excited? That I own a house, or rather the bank owns it for another six years, but I almost fully own a house. I always, always wanted my own home, even as a kid. I used to have a dollhouse that I adored and that had a handle so I could carry it around. I used to dream about what my house would look like. A ranch style house wasn’t in my dreams, but when my husband and I bought it, this was exactly what I wanted–three bedrooms, two bathrooms, a huge basement, a living room with a cathedral ceiling, and a porch.

Of course, 50-year old Holly can’t wait for the day to come when she can sell the damn house and move into an apartment again. I want a place that someone else maintains and if there’s an issue, I know who to call. And to be within walking distance of ANYTHING? That, my friend, is my dream.

You know what, though? I don’t think I’d ever want the opportunity to say anything to my younger self. My god…the grief, the loss, the shit that is yet to come for that young woman. Yet, there are also many amazing humans she hasn’t met yet, or experiences she’s hasn’t lived.

This older Holly is hoping for more of those things, too.

But right now, I am desperate to know what YOU think your younger self would be excited to know about your current self?

I’m listening, friends. ❤

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Coming Back from the Darkness

I have been 5 weeks social media free. I feel like I should have a blue chip of some sort. I started the break because of how I was feeling–mentally and emotionally fragile. I can’t say my mental state has dramatically improved, but it’s certainly better.

What I’ve realized during this break is that I don’t really talk to many people that are not work related. I think I conversed with 27 people via text, phone or email since October 1, that I am not related to or work with. Yet I have over 300 Facebook “friends.” Do I miss some people I would “see” on social media? Absolutely. I have a cohort of lovely folks from the library I left in May that I’d like to see and hear from again. I haven’t wanted to this past month because I think I needed to cut all ties for a while. I didn’t want to know what the library was doing and to be completely honest, I still really don’t. In a weird way I left a little piece of my heart there. It reminds me a bit of a divorce. I truly love my new workplace and colleagues and the job itself is the exact thing I want to be doing, but I was hurting from not being a part of this small library community. I had to grieve in a bubble for a while and deal with changes in my life. I have embraced those changes, but still, change is hard!

But what have I learned during this month? I’ve learned that social media eats up a lot of my brain power and often fucks up my emotional health. It is a time suck and takes away from my reading and my family, and honestly? Just thinking! I’ve been observing my son as he takes college classes through his high school, reading challenging materials and I see what a deep thinker he is becoming. I used to be just like that, too. Yet in the past decade or maybe two decades, I’m no longer that person. I’m not sure I think deeply about much of anything except how I’m going to get out of debt. (And that’s not really thinking, that’s just stressing.) I feel…superficial. Like a cardboard cut-out of the person I used to be. Is that who I am now? I don’t want to be. I want to be that person who reads a variety of novels and nonfiction, who loves to talk with people about what they’ve read and are reading and have discussions about all of it. I don’t always want to talk about current events or politics because honestly it often hurts, but maybe that’s ok sometimes, too.

I’ve been reading lots of romance novels lately, partially because they make me feel good. I want the HEA (Happily Ever After) for myself and everyone else, so if I can read it about it and someone else gets it, then kudos for them! But it doesn’t take a lot of brainwork to read these books. They bring me joy, for sure, and I’m not going to give them up, but I need to start adding other things to my reading repertoire again.

A month ago, my son kept encouraging me to read “Darkness Visible: a Memoir of Madness” by William Styron. It’s a very short book, really a long essay, about Styron’s depression. My boy has been dealing with his own depression for several years now, but last spring he was in a very dark place. He found this book at the school library. He curled up in a corner and started to read it. For him, it was the first time someone described what he himself was feeling, “a veritable howling tempest in the brain” (p. 38). He felt seen and not quite so alone. And yet…I couldn’t read the book. I kept putting it off, saying I’d read it eventually. Finally last week, I made myself read the first page, then another, then another. I couldn’t stop reading it until it was finished. It was…literary and lovely and difficult. Difficult only because the pain described is what I knew my son felt, yet it was lovely because now I understood a little more about my child–all through literature.

And maybe it helped open my eyes to reading things again that are not so…easy to understand. Challenging ourselves is how we grow, right? I run longer distances to challenge my body and build up endurance to run even longer distances. So why aren’t I challenging my mind to do the same?

I just…I just want to keep using my brain. I want to keep learning and listening and philosophizing. I had an incident two weeks ago where I couldn’t hold the thread of a discussion in a meeting I was in. Is it menopause brain? Is it early onset dementia? Whatever it is it scared the bejezus out of me. I didn’t tell anyone but my therapist at first. I want my doctor to run some tests to see what’s going on with my brain. (But now I don’t have health insurance for a month, so that’ll have to wait!)

So until then, I’m hoping to read more, work on my Spanish, maybe even try a sudoku. (I’ve never done one in my life.) I’m back to eating salmon once or twice a week and upping my vegetable consumption. And with all of that in my mind, I think I might dip my toe back into social media once again. Just to see some of my friends’ faces again, to see their children, and to see their holiday decorations. (Seriously, you know how much I love the decorations!) But if I start to sense that fragility in myself again, I know what I need to do. And maybe I need to downsize that friends list a bit, too.

Baby steps, right?

Thanks for listening, y’all. Hugs to you. ❤

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Reality Check

I’ve been running a lot lately–for me, that is. I ran just over 15 miles each week for the past two weeks. They all felt just so…good. I ran in Springfield, Massachusetts two weeks ago while I was at a conference, and it was so atypical of my runs while traveling. Usually I’m over tired and cranky but desperately want to be outside for a bit and log a few miles. But this time it was just….freeing.

The Lorax at the Dr. Seuss Memorial Sculpture Garden in Springfield, MA.

I am trying to be present in not only my running, but my life. Breaking up with social media has helped me do that. When I run, sometimes I can’t really be where I am or be fully conscious of each step I take because it can be torturous and I just need to finish, damn it! But sometimes I can really enjoy my surroundings, the wind on my face, the sight of the gorgeous fall foliage, the way the light has changed now that we’re into autumn, the crisp smell of the air–it’s all really quite wonderful.

And sometimes, you just have to drag your ass downstairs and onto the treadmill because there’s a nor’easter and the rain is just a bit too much. Whenever I run on the treadmill, I try to be elsewhere in my head. Just focus on that ink blot kind of spot on the basement wall and think of running outside. The other day, though, in that rainy weather, I was halfway through my run, when my husband came downstairs to continue to sort his father’s belongings. After his father died in March, his mother moved back to Maine and brought much of their “stuff” with them, which is currently being housed in our basement. My husband’s job is to look through what’s here and determine if anything should be kept, donated or thrown out. Watching this man, whom I’ve loved and spent nearly my entire adult life with, slowly pick up every one of his father’s items and toss in one bin or another, was difficult. I saw this wide range of emotions pass over his face (grief, apathy, confusion, joy) and I couldn’t help but wonder if some day, I’ll be doing the same task with his things.

As many of you know that read this blog, my husband has had a variety of health challenges over the past four years, with the worst being congestive heart failure. Just this summer he has finally gotten control of his diabetes, which was a huge contributing factor to his worsening health. He feels better now that his blood sugar is where it should be, doesn’t ache as much, feels like living again. And yet…he has chosen to face up to the fact that he may not live another 10 years. In this day and age, when you’re 55 you think you might have at least another 20 if not 30 years left. But when you have a chronic health condition, especially one like congestive heart failure, living to a ripe old age is just not reality.

But while he was sick, he didn’t want to talk about, nor was honest about his mortality. Nothing. And now? This weekend I mentioned that one of the retirement accounts I have, I can actually start withdrawing from in 10 years. He said, so matter-of-factly, “I’ll never see you do that.” At first I didn’t know what he meant. Then I asked, “Because you won’t be here?” He replied that yes, he’ll be dead before then. There was no joking, no laughter like we often do when we talk about our health or aches and pains. It was just a fact and nothing more.

For several years, I’ve known that my husband will not live to be a very old man. And I’ve been ok with that fact. Sound cold-hearted? Maybe, but I come from a long line of women who outlived their husbands and kept living anyways. It’s what women do. Plus, in all honesty, I am very different from my spouse and live a different life, a healthier lifestyle for sure.. I am more social, do different activities than he does, often eat different meals.

But the reality of living alone, after our son has grown, isn’t the most welcoming thought I always figured it would be. Just the other night, I was lying on the couch, reading, with the tv fireplace glowing. My kid was out and my husband was sleeping, so I felt like I was all alone in my home. And for a few minutes I just sat in that feeling of being alone, or rather, being widowed. I have my son and many friends and a few family members, so I am not lonely but often enjoy being alone. This night, though? It was a little scary, a bit sad, and not the best feeling. It’s something I’ve been talking to my therapist about, to understand what’s going on in my brain and heart.

So now, I really, really try to enjoy my time with my spouse. There will always be moments and hours that I’m angry with him or frustrated or fed up, but that’s ok. We’re humans and living with and loving someone for decades is not an easy thing to do in all honesty. I think it’s tough as shit. But we do our best, right? We carry on, we try to live our lives as well as we can, and we love as much as we can, too.

So that’s what I’m going to do.

Love well and carry on.

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The Gagging Seagull

Just over a week ago, I decided to take a break from social media. I’ve often had a difficult time with Facebook in particular, mostly because I compare myself to others way too often, and sometimes I just get jealous. Not even envious, but that nasty feeling you get when you become enraged because someone was hanging out with someone else yet didn’t invite you. Or a friend that you thought shared everything with you, was off on a vacation that you had no idea was happening. Shit like that really shouldn’t matter, but it did matter. So instead of unfriending people or blocking them or all of that bullshit, I just shut it all down.

When I told some colleagues at a meeting recently that I was taking a break from social media, nearly the entire room oohed and aahed and many said “Good for you!” or “I wish I could do that.” One colleague told me she left Facebook 8 months ago and never looked back, but can’t shake Instagram yet.

We’re kind of fucked up, aren’t we?

I’ve always loved sharing photos on FB and Insta, pics of my kid, my cats, and myself after a run. Having a supportive community can be tremendously helpful, and to be honest, I’m damn proud of my running. I’m still not losing the weight I want to, but my legs are getting stronger and I’m getting faster. Something I didn’t think I could get at 50 years old. (And maybe it’s my last hurrah, but I’ll take it while I have it.)

But in the past few weeks, I felt like my brain was too full. I constantly felt overstimulated. I didn’t want to know about anyone else’s lives anymore. I wanted to concentrate on the people I actually see or talk with every day. I wanted to be more present in MY life, and leave some others behind.

My son’s mental health has seemed fragile this past month and my husband has quit his job and is about to start a new one. I’ve been upset at the management of the Trevor Project and at my one year anniversary last week, I put in for a leave of absence. Work has been good, but very challenging these past two weeks. A lot of life has been happening and I just needed the world to quiet down.

I recently finished reading the novel, “We All Want Impossible Things” by Catherine Newman. It’s about two best friends, Ash and Edi, in the middle of their lives, but Edi is dying from ovarian cancer. Edi ends up staying at a hospice near Ash, and the book is about their love and friendship and how fucked up Ash feels. It’s beautiful and hilarious and infuriating. And so damn real.

I laughed out loud through many parts of the book (and sobbed at the end), but there’s one part in particular I want to tell you about. Ash, the woman telling the story, shared a memory about a visit she had with her parents. They went to a fancy seafood restaurant where they ate clams and lobster and looked out at the sea. The sky was a perfect blue, and in the window they were looking out of, stood a seagull, choking on a starfish. It would gag and barf and 3 of the starfish’s legs were sticking out of its mouth, just a few inches from their table. Ash’s mother commented with all seriousness, “This is lovely,” and Ash laughed. “Absolute perfection with a gagging seagull in the middle of it sometimes feels like my entire life.” (p. 125)

When I read that paragraph, I started to chuckle. Then I put the book down and laughed…and laughed….and laughed. I wasn’t laughing in the kind of way where you can’t breathe, but it was this prolonged, deeply felt joy and recognition kind of laughter. Just this past year I’ve been able to see some of that perfection and can look past the choking seagull. Both are always there, and some days I can only stare at that damn seagull and can’t see anything else. My grief for my lost family or even for the way of life we’ve lost as a result of my husband’s health can be overwhelming some days, and it takes everything I have to not put that seagull out of its misery. But other days? It’s blue sky for miles.

I’m hoping that I’ll have the fortitude to get back on social media and greatly minimize the folks I keep in touch with. Or maybe I won’t. Maybe I’ll just keep using the AMAZING amount of time I have now to read and write and enjoy my little life. Either way, I’ll still be here.

Take care of yourself, friends.

“Caring for myself is not self-indulgence, it is self-preservation, and that is an act of political warfare.”–Audre Lord