running

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Me, Myself and I

 I read a newsletter called Wondermind. It comes to my email inbox three times a week–Monday, Wednesday and Friday. They often have articles I don’t necessarily read, interviews I definitely don’t read, and TikTok videos I feel old to watch. But there are always little tidbits at the beginning of every newsletter that make me reevaluate my mental health or maybe take a step back and look at my day and figure out how to make it better. I like it. A lot.

Last week, one of the newsletters asked this question: What is one aspect of your current life that a younger version of yourself would be excited about? I read this question after having lunch with an old friend. I’ve known this man for over 40 years, but as we ate lunch and talked about our lives, I realized I really only knew the childhood version of him. It kind of astounded me the shit he went through as a young adult and the pain he’s endured as an older one. At one point we discussed how we came to where we are–how did we change our bodies, why did we get into the work we’re in, and what regrets do we have.

So when I read the question, “What is one aspect of your current life that a younger version of yourself would be excited about?”, I knew right away what it was. Or I thought I did.

Seeing this person in the mirror was the first thing I thought of:

This woman just ran 4 miles, negative splits, and had fun doing it. She’s fairly fit, runs for fun and for exercise, and looks half decent. And I love her hair. It’s really pretty. 🙂

Thirty years ago, I could not have run 4 miles or even 1 mile. Probably. I might have been able to but it just wasn’t anything I saw people doing much back then, or really anything I thought I could do. But now? After 13 years of running, I don’t want to stop. There are some days I hate it, but it’s more that I hate going out in the cold or the rain or the wind. But once that run is done? Hot damn, do I feel good!

I think my younger self would be shocked, but ecstatic to see me running. But you know what would really make that 20-year old Holly excited? That I own a house, or rather the bank owns it for another six years, but I almost fully own a house. I always, always wanted my own home, even as a kid. I used to have a dollhouse that I adored and that had a handle so I could carry it around. I used to dream about what my house would look like. A ranch style house wasn’t in my dreams, but when my husband and I bought it, this was exactly what I wanted–three bedrooms, two bathrooms, a huge basement, a living room with a cathedral ceiling, and a porch.

Of course, 50-year old Holly can’t wait for the day to come when she can sell the damn house and move into an apartment again. I want a place that someone else maintains and if there’s an issue, I know who to call. And to be within walking distance of ANYTHING? That, my friend, is my dream.

You know what, though? I don’t think I’d ever want the opportunity to say anything to my younger self. My god…the grief, the loss, the shit that is yet to come for that young woman. Yet, there are also many amazing humans she hasn’t met yet, or experiences she’s hasn’t lived.

This older Holly is hoping for more of those things, too.

But right now, I am desperate to know what YOU think your younger self would be excited to know about your current self?

I’m listening, friends. ❤

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Coming Back from the Darkness

I have been 5 weeks social media free. I feel like I should have a blue chip of some sort. I started the break because of how I was feeling–mentally and emotionally fragile. I can’t say my mental state has dramatically improved, but it’s certainly better.

What I’ve realized during this break is that I don’t really talk to many people that are not work related. I think I conversed with 27 people via text, phone or email since October 1, that I am not related to or work with. Yet I have over 300 Facebook “friends.” Do I miss some people I would “see” on social media? Absolutely. I have a cohort of lovely folks from the library I left in May that I’d like to see and hear from again. I haven’t wanted to this past month because I think I needed to cut all ties for a while. I didn’t want to know what the library was doing and to be completely honest, I still really don’t. In a weird way I left a little piece of my heart there. It reminds me a bit of a divorce. I truly love my new workplace and colleagues and the job itself is the exact thing I want to be doing, but I was hurting from not being a part of this small library community. I had to grieve in a bubble for a while and deal with changes in my life. I have embraced those changes, but still, change is hard!

But what have I learned during this month? I’ve learned that social media eats up a lot of my brain power and often fucks up my emotional health. It is a time suck and takes away from my reading and my family, and honestly? Just thinking! I’ve been observing my son as he takes college classes through his high school, reading challenging materials and I see what a deep thinker he is becoming. I used to be just like that, too. Yet in the past decade or maybe two decades, I’m no longer that person. I’m not sure I think deeply about much of anything except how I’m going to get out of debt. (And that’s not really thinking, that’s just stressing.) I feel…superficial. Like a cardboard cut-out of the person I used to be. Is that who I am now? I don’t want to be. I want to be that person who reads a variety of novels and nonfiction, who loves to talk with people about what they’ve read and are reading and have discussions about all of it. I don’t always want to talk about current events or politics because honestly it often hurts, but maybe that’s ok sometimes, too.

I’ve been reading lots of romance novels lately, partially because they make me feel good. I want the HEA (Happily Ever After) for myself and everyone else, so if I can read it about it and someone else gets it, then kudos for them! But it doesn’t take a lot of brainwork to read these books. They bring me joy, for sure, and I’m not going to give them up, but I need to start adding other things to my reading repertoire again.

A month ago, my son kept encouraging me to read “Darkness Visible: a Memoir of Madness” by William Styron. It’s a very short book, really a long essay, about Styron’s depression. My boy has been dealing with his own depression for several years now, but last spring he was in a very dark place. He found this book at the school library. He curled up in a corner and started to read it. For him, it was the first time someone described what he himself was feeling, “a veritable howling tempest in the brain” (p. 38). He felt seen and not quite so alone. And yet…I couldn’t read the book. I kept putting it off, saying I’d read it eventually. Finally last week, I made myself read the first page, then another, then another. I couldn’t stop reading it until it was finished. It was…literary and lovely and difficult. Difficult only because the pain described is what I knew my son felt, yet it was lovely because now I understood a little more about my child–all through literature.

And maybe it helped open my eyes to reading things again that are not so…easy to understand. Challenging ourselves is how we grow, right? I run longer distances to challenge my body and build up endurance to run even longer distances. So why aren’t I challenging my mind to do the same?

I just…I just want to keep using my brain. I want to keep learning and listening and philosophizing. I had an incident two weeks ago where I couldn’t hold the thread of a discussion in a meeting I was in. Is it menopause brain? Is it early onset dementia? Whatever it is it scared the bejezus out of me. I didn’t tell anyone but my therapist at first. I want my doctor to run some tests to see what’s going on with my brain. (But now I don’t have health insurance for a month, so that’ll have to wait!)

So until then, I’m hoping to read more, work on my Spanish, maybe even try a sudoku. (I’ve never done one in my life.) I’m back to eating salmon once or twice a week and upping my vegetable consumption. And with all of that in my mind, I think I might dip my toe back into social media once again. Just to see some of my friends’ faces again, to see their children, and to see their holiday decorations. (Seriously, you know how much I love the decorations!) But if I start to sense that fragility in myself again, I know what I need to do. And maybe I need to downsize that friends list a bit, too.

Baby steps, right?

Thanks for listening, y’all. Hugs to you. ❤

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Reality Check

I’ve been running a lot lately–for me, that is. I ran just over 15 miles each week for the past two weeks. They all felt just so…good. I ran in Springfield, Massachusetts two weeks ago while I was at a conference, and it was so atypical of my runs while traveling. Usually I’m over tired and cranky but desperately want to be outside for a bit and log a few miles. But this time it was just….freeing.

The Lorax at the Dr. Seuss Memorial Sculpture Garden in Springfield, MA.

I am trying to be present in not only my running, but my life. Breaking up with social media has helped me do that. When I run, sometimes I can’t really be where I am or be fully conscious of each step I take because it can be torturous and I just need to finish, damn it! But sometimes I can really enjoy my surroundings, the wind on my face, the sight of the gorgeous fall foliage, the way the light has changed now that we’re into autumn, the crisp smell of the air–it’s all really quite wonderful.

And sometimes, you just have to drag your ass downstairs and onto the treadmill because there’s a nor’easter and the rain is just a bit too much. Whenever I run on the treadmill, I try to be elsewhere in my head. Just focus on that ink blot kind of spot on the basement wall and think of running outside. The other day, though, in that rainy weather, I was halfway through my run, when my husband came downstairs to continue to sort his father’s belongings. After his father died in March, his mother moved back to Maine and brought much of their “stuff” with them, which is currently being housed in our basement. My husband’s job is to look through what’s here and determine if anything should be kept, donated or thrown out. Watching this man, whom I’ve loved and spent nearly my entire adult life with, slowly pick up every one of his father’s items and toss in one bin or another, was difficult. I saw this wide range of emotions pass over his face (grief, apathy, confusion, joy) and I couldn’t help but wonder if some day, I’ll be doing the same task with his things.

As many of you know that read this blog, my husband has had a variety of health challenges over the past four years, with the worst being congestive heart failure. Just this summer he has finally gotten control of his diabetes, which was a huge contributing factor to his worsening health. He feels better now that his blood sugar is where it should be, doesn’t ache as much, feels like living again. And yet…he has chosen to face up to the fact that he may not live another 10 years. In this day and age, when you’re 55 you think you might have at least another 20 if not 30 years left. But when you have a chronic health condition, especially one like congestive heart failure, living to a ripe old age is just not reality.

But while he was sick, he didn’t want to talk about, nor was honest about his mortality. Nothing. And now? This weekend I mentioned that one of the retirement accounts I have, I can actually start withdrawing from in 10 years. He said, so matter-of-factly, “I’ll never see you do that.” At first I didn’t know what he meant. Then I asked, “Because you won’t be here?” He replied that yes, he’ll be dead before then. There was no joking, no laughter like we often do when we talk about our health or aches and pains. It was just a fact and nothing more.

For several years, I’ve known that my husband will not live to be a very old man. And I’ve been ok with that fact. Sound cold-hearted? Maybe, but I come from a long line of women who outlived their husbands and kept living anyways. It’s what women do. Plus, in all honesty, I am very different from my spouse and live a different life, a healthier lifestyle for sure.. I am more social, do different activities than he does, often eat different meals.

But the reality of living alone, after our son has grown, isn’t the most welcoming thought I always figured it would be. Just the other night, I was lying on the couch, reading, with the tv fireplace glowing. My kid was out and my husband was sleeping, so I felt like I was all alone in my home. And for a few minutes I just sat in that feeling of being alone, or rather, being widowed. I have my son and many friends and a few family members, so I am not lonely but often enjoy being alone. This night, though? It was a little scary, a bit sad, and not the best feeling. It’s something I’ve been talking to my therapist about, to understand what’s going on in my brain and heart.

So now, I really, really try to enjoy my time with my spouse. There will always be moments and hours that I’m angry with him or frustrated or fed up, but that’s ok. We’re humans and living with and loving someone for decades is not an easy thing to do in all honesty. I think it’s tough as shit. But we do our best, right? We carry on, we try to live our lives as well as we can, and we love as much as we can, too.

So that’s what I’m going to do.

Love well and carry on.

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The Gagging Seagull

Just over a week ago, I decided to take a break from social media. I’ve often had a difficult time with Facebook in particular, mostly because I compare myself to others way too often, and sometimes I just get jealous. Not even envious, but that nasty feeling you get when you become enraged because someone was hanging out with someone else yet didn’t invite you. Or a friend that you thought shared everything with you, was off on a vacation that you had no idea was happening. Shit like that really shouldn’t matter, but it did matter. So instead of unfriending people or blocking them or all of that bullshit, I just shut it all down.

When I told some colleagues at a meeting recently that I was taking a break from social media, nearly the entire room oohed and aahed and many said “Good for you!” or “I wish I could do that.” One colleague told me she left Facebook 8 months ago and never looked back, but can’t shake Instagram yet.

We’re kind of fucked up, aren’t we?

I’ve always loved sharing photos on FB and Insta, pics of my kid, my cats, and myself after a run. Having a supportive community can be tremendously helpful, and to be honest, I’m damn proud of my running. I’m still not losing the weight I want to, but my legs are getting stronger and I’m getting faster. Something I didn’t think I could get at 50 years old. (And maybe it’s my last hurrah, but I’ll take it while I have it.)

But in the past few weeks, I felt like my brain was too full. I constantly felt overstimulated. I didn’t want to know about anyone else’s lives anymore. I wanted to concentrate on the people I actually see or talk with every day. I wanted to be more present in MY life, and leave some others behind.

My son’s mental health has seemed fragile this past month and my husband has quit his job and is about to start a new one. I’ve been upset at the management of the Trevor Project and at my one year anniversary last week, I put in for a leave of absence. Work has been good, but very challenging these past two weeks. A lot of life has been happening and I just needed the world to quiet down.

I recently finished reading the novel, “We All Want Impossible Things” by Catherine Newman. It’s about two best friends, Ash and Edi, in the middle of their lives, but Edi is dying from ovarian cancer. Edi ends up staying at a hospice near Ash, and the book is about their love and friendship and how fucked up Ash feels. It’s beautiful and hilarious and infuriating. And so damn real.

I laughed out loud through many parts of the book (and sobbed at the end), but there’s one part in particular I want to tell you about. Ash, the woman telling the story, shared a memory about a visit she had with her parents. They went to a fancy seafood restaurant where they ate clams and lobster and looked out at the sea. The sky was a perfect blue, and in the window they were looking out of, stood a seagull, choking on a starfish. It would gag and barf and 3 of the starfish’s legs were sticking out of its mouth, just a few inches from their table. Ash’s mother commented with all seriousness, “This is lovely,” and Ash laughed. “Absolute perfection with a gagging seagull in the middle of it sometimes feels like my entire life.” (p. 125)

When I read that paragraph, I started to chuckle. Then I put the book down and laughed…and laughed….and laughed. I wasn’t laughing in the kind of way where you can’t breathe, but it was this prolonged, deeply felt joy and recognition kind of laughter. Just this past year I’ve been able to see some of that perfection and can look past the choking seagull. Both are always there, and some days I can only stare at that damn seagull and can’t see anything else. My grief for my lost family or even for the way of life we’ve lost as a result of my husband’s health can be overwhelming some days, and it takes everything I have to not put that seagull out of its misery. But other days? It’s blue sky for miles.

I’m hoping that I’ll have the fortitude to get back on social media and greatly minimize the folks I keep in touch with. Or maybe I won’t. Maybe I’ll just keep using the AMAZING amount of time I have now to read and write and enjoy my little life. Either way, I’ll still be here.

Take care of yourself, friends.

“Caring for myself is not self-indulgence, it is self-preservation, and that is an act of political warfare.”–Audre Lord

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Weighted to the Ground

This morning I drove to my hometown to get my hair trimmed. I go every 6-8 weeks and I often find it therapeutic. My dear friend, Lisa, has been cutting my hair for over 20 years. We were co-workers and friends before she began her shop with her business partner, Tanda. So when I get my hair cut and my eyebrows waxed, it’s typically a fun time–a time to catch up and a time for both of them to laugh as I swear and yell as Lisa rips my eyebrows off.

I was listening to my running playlist as I drove towards St. Albans. I had a pretty good run earlier and I wanted to keep my good mood going. Yet just 2 miles after I left my home, one of my favorite songs, “Little Bird” by Annie Lennox began to play. I’ve talked about this song before. It’s one that my brother added to one of two running cds he made me shortly after I started running 13 years ago, and we were both huge fans of both the Eurythmics and Annie Lennox. Since my brother’s death, it’s become a song that reminds me of him. I remember singing it with him in the car, and just this morning, I remembered how we would sometimes run our hands and arms out the car windows like a bird.

I had forgotten that little memory.

And since today is the eve of Phil’s death anniversary, it triggered the memories of that horrible day.

I was in his hospital room again, watching him trying to tear out his IVs so we wouldn’t see him hooked up to many machines. I was at the foot of his bed again with my sister, as we looked at the chart on his wall that showed how little he weighed–just 140 pounds at 6’5″. I was there again, holding his hand, telling him we came to say goodbye and that I loved him and my husband loved him and his nephew loved him. I was there once again, watching him nod his head over and over, like he was saying, “I know, I know.”

And then I was driving. I drove about 2 miles with no recognition this morning. None.

Needless to say, I sobbed much of the rest of the drive.

Yet just before I arrived at Lisa’s, I remembered my mother on that day. At one point Phil’s partner, Larry and I, went to talk to Phil, to convince him that it was ok not to live this way. It was ok to let go because we knew that was what he wanted, but it must have also been the scariest fucking thing to decide. (I remain steadfast in my knowledge that I saw the most courageous act that day when Phil made the decision to die.) Once he nodded his head and made that decision to be taken off of his life support, Larry and I went back to the private family waiting room. I remember my mother looking up at me with what I can only view as hope and saying, “What did he say?” I’m not sure what I replied exactly, but I think it was something like, “He doesn’t want to keep going.” But I do remember Mom’s face crumpling and shaking her head and lowering it to cry.

When I left Lisa’s, I just wanted to be with my mom. I went to her grave which is also in my old hometown. Once I got to the cemetery, I was jarred by the fact that the large, beautiful tree in front of the cemetery was cut down. “What the fuck?” I yelled. I realize the tree was probably dead or dying and would have toppled over and broken headstones. That better be why because it was really upsetting. Without that shade and just the glorious trunk, leaves and branches, the cemetery looks exactly like what it is–a field of stones. If a place like that is possible to get more depressing, it did.

I parked near Mom’s headstone, grabbed a blanket from my car, knelt down in front of her stone and wept. I talked to her, told her how much I missed her and Phil and Dad. I brushed off her stone and laid my forehead on it. I wasn’t there for very long. I just needed to see her name and pretend that she was there.

I stopped at Wal-Mart on the way home, feeling a bit dazed. I walked slowly in, bought dishwasher detergent and Tide Pens and left. As I walked across the parking lot, I saw this guy walking toward the entrance. I started to wonder if his day had been anything like mine. Did he spend part of the morning crying at his mother’s gravestone, laying his head on the warm stone, kissing her name? Did he wish she was there just for a few minutes to hold him, to listen to his worries and his frustrations?

I hope not.

But you never really know what others are going through, do you? Like Lennox’s “Little Bird,” some of those people you see each day may be “a troubled soul who’s weighted, weighted to the ground” and are just not able to fly.

Friends, in honor of my lovely brother, Phil, my “person,” I hope you take a little time this weekend and do something to feel like you are truly alive. Do something you absolutely enjoy, something to make you feel good. In Phil’s last few years of life, he couldn’t do much, but tried to live through food, whether it was making a fun international dish, or just enjoying whatever he ate or drank.

Tomorrow I will be hiking with two of my best friends. Typically, my son and I do something together, but now that he’s 16 with a job, license, and boyfriend, he’ll be working then hanging out with his lovey. We’ll both be spending time with some people that we love and that’s a huge part of what it means to live well.

Please, my friends, take a minute to hug, kiss, talk with or just touch someone you love this weekend, too. (With their permission, of course.) You won’t regret it.

Hugs and sloppy kisses.

❤

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Change=Grief

Tomorrow is my last day at the Pittsfield Public Library. I get a bellyache when I think about it. Am I excited for my new job at the Bangor Public Library? Yes. Absolutely. It’s like a career change! A larger library, new colleagues, new patrons, new policies and procedures and problems. It’s a new adventure for sure.

Will I miss my old job? Of course. My colleagues, my patrons, my friends, and honestly, being a big fish in a little pond can be fun. But I won’t miss the politics, the building maintenance, and a few other things and people that I won’t mention.

Two days ago, as I drove to work, I started to think about my brother. He had been a patron at Pittsfield–I have many memories of him there. As I got closer to the library, I started to cry. So much so that I couldn’t breathe. You know the kind of sobbing where you can’t catch your breath and you start to gulp for air? Yeah. That.

I feel like I’m losing Phil all over again. I’m losing another place that holds memories of him laughing and pointing out books he’s read or listened to or films he’s watched. I’m losing a place where he existed.

Once I got to work, though, I was able to calm down and just do my thing. The Friends of the Library threw me a farewell party, so I cried often throughout the day as people stopped by to wish me well.

You know…I feel a little lost. Working at a place for 17 1/2 years is a lifetime. I’ve watched so many kids grow up and have kids of their own. I’ve attended funerals of many of my beloved patrons, have given baby shower gifts to others. I will miss so many of these beautiful humans. I’m tremendously sad that I won’t see some of my favorite littles grow up, and this might sound odd, but I’m also upset I won’t see some of my favorite people die. I will no longer be a part of their lives and I’m having a hard time with that.

But, like the sweet notebook these folks gave me says, love is letting go. And it’s time I do that.

I’m trying.

So…if you’re reading this and you’ve been one of my Pittsfield Library patrons, I want to thank you for allowing me to be part of your lives. It’s truly been an honor and gift to be a part of your journey all these years. You’ve also been a part of mine. So many of you have watched my boy grow up, have been with me as I tried to live in a world without my dear brother and parents, have watched me struggle with my husband’s health, but also have watched me become a runner–something I wasn’t when I started at the Pittsfield Library. You’ve watched me lose over 50 pounds and gain nearly 20 since I became director. You’ve also seen a variety of hair lengths and styles and eyeglass frames. Thanks for being with me through so many of my life’s changes and being a witness to this latest one.

Keep reading, my friends, keep being kind, and please keep visiting that great library of yours. Continue to let the powers that be know how much the library and staff mean to you and your community.

And thank you, from the bottom of my heart and soul, for all the love. ❤

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The Beginning

“The beginning is always today.”–Mary Wollstonecraft (feminist/writer)

My worry and laugh lines are embedded, but I’m still smiling.

A new year, a new you. Resolutions, beginnings, fresh starts. It all sounds marvelous, doesn’t it? And right now, at this moment, I have high hopes for 2023.

Like the past 5 years, 2022 had its challenges and health scares for myself, my family and some of my friends. A few friends suffered devastating losses of partners or parents, and others are waiting for those things to happen in 2023.

Although I expect some awful events to happen this year, I’m attempting to hope for the best and soak up many, many good moments that happen.

On New Year’s Eve, my husband, son and I talked about our goals and wishes for the upcoming year. The husband’s goal? Stay out of the hospital this year. (This is also a wish for him from my son and I!) My son has a few wonderful goals like getting his license, continuing to get fit and to be more of a leader within his LGBTQ+ community. My goal and wish were basically the same: to make and experience good changes this year. That’s a nice broad, vague goal, isn’t it? 😉

I made some significant changes to my life in 2022, including adding two major volunteer positions to my weekly schedule. Each is a 2-3 hour commitment each week, but I enjoy both of them and feel tremendously better about myself as a human being because of the work. I feel like I’m finally paying back the kindness shown to me over the years by paying it forward to those that need it right now. People often say how selfless volunteering is, but for me, it’s really selfish. There’s a high involved when you help others, and it can feel a bit like the running high. Typically, acts of kindness can increase your oxytocin and dopamine, which gives you a feeling of euphoria. This is actually called the “helper’s high.” Isn’t that awesome?!?

I’ll continue my volunteer work this year, but I’m also ready for some changes to be made within my career. I don’t know what this means yet, but I know my stress level at work in 2022 was higher than ever before. Some of that was due to staff shortages, but I also tend to spread myself too thin. That has to change this year. I’ve always told other library directors that your work is not your life, so sometimes you just need to leave this stuff behind, but I did NOT take my own advice. I just wanted my library to be better and better, and it is, but I don’t need to be involved 24/7. For my own wellbeing, a lot has to change there–more delegating, more boundaries, and maybe even a career change. I don’t know yet. I just feel like something big has to change in order for me to continue wanting to get out of bed each morning to go to work.

I plan to continue to run and train for a marathon again. Why the hell not, right? If my body goes kaput, it goes kaput. I can already feel something happening to my left ankle, so I doubt a marathon is in the books just yet. But I’ll still give it a shot. I hope to at least run 500 miles this year. Again, I’ll try but do my best to not be disappointed or discouraged if it doesn’t happen.

I’ll be traveling more as long as the universe allows it. Visiting my dear friend, Becky, in Mexico at the end of this month. A work trip to Wisconsin in April. Hopefully a drive out to the Christmas Story house in Cleveland this summer. Now I need a short trip for this fall. Or another summer trip to North Carolina to see my friend, Monica, and sea turtles hatching?

This year I hope to treat people a bit better or…differently. We just don’t know how long we have on this planet, right? I’m starting to treat some folks like it’s their last year. It may sound like a morbid way of treating others but losing people I love and working with hospice patients has made me look at my world in a different light. During my brother’s, father’s and mother’s last Christmases, I didn’t KNOW it was their last. Did I ever snap at them or lose patience with them that day? I hope not. Did I show them just that little extra dash of kindness? I don’t know. If I did, I wasn’t aware of it.

So, I’m digging deep to find a bit more patience and goodwill for my loved ones. Well, I don’t always have to dig deep, but sometimes it’s necessary. But within that good treatment of others, I’m defining boundaries for myself and for my relationships. I tend to love others with everything I have and I’m not sure I can continue to do that. Or maybe I can. As I’m writing this, I’m thinking about the people I love fiercely, and I can’t imagine loving them any other way. It’s dishonest to do so. It doesn’t feel right not to love them with my whole being.

Huh.

Maybe some things won’t change after all. ❤

Happy New Year to all of you. May your resolutions, hopes, or dreams be fulfilled. If none of those things happen, I hope you feel loved and appreciated. Because seriously, just feeling those things certainly feels like a dream coming true.

Hugs to you all.

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The List

“If everyone else comes first, you won’t last.”

As I continue my hospice volunteer training, my knowledge about both the dying process and ways to make those that are dying comfortable, seems to grow exponentially. For instance, the pain and suffering that some people go through as they die actually anchor them to this world. Yes, they will still die eventually, but with good symptom and pain management, you can lift that anchor and help them sail on to wherever they need to go. Of course, I will not be helping in the pain management portion. As a volunteer, I’m there to listen, give comfort in my presence (I hope) or maybe even help around the house. If I can do anything at all to provide assistance to someone in their last days, or to the families that are dealing with their grief, then I’m right where I’m supposed to be.

My training and my husband’s health has prompted some overdue conversations. My husband and I talked a lot about the heavy hearts we’ve all been carrying lately. Our son and I are always on alert when we walk into our home, wondering if we’ll find my husband dead. Although my husband doesn’t want to die, he’s not afraid to. He has his faith, so what worries him more is the journey in-between life and death, the pain and suffering that often accompanies that. I talked to him about what I learned, and hospice care is all about helping with that journey, to make a person dying more comfortable and to improve their quality of life while they are still here.

Of course, we hope he still has years left, but we never know, do we? We’ve talked about having to apply for disability because we’re not sure how much longer he can work. He’s never fully recovered from his ventilator/coma horror show in 2020, but after last year’s heart attack he’s much worse. BUT he does have good days, and today was one of them. We’re in a good space today, so we’ll take it.

Besides my hospice knowledge increasing, do you know what else has grown incredibly? My bucket list!! Wait, no, my “Life To Do List.” If you have a better name, please tell me. I’m not loving the list names I’ve found so far. I chose this name though because my list isn’t all adventures or traveling. I have things like: Learn CPR and First Aid, Take Swimming Lessons, Make Homemade Pasta. But also, of course, I have: See the Grand Canyon, Go to NYC at Christmastime, Walk the Berlin Wall Trail. And within some of my activities or adventures, I have the people I want to see or spend time with. I LOVE spending time with myself, but some of these things would be so much better with people I enjoy being with. Because ultimately? Those people are what really make my life joyful. Vacationing on an island would be rad, but what would really make it spectacular is to do it with my girlfriends. Seeing the Boston Red Sox play is an experience I only want to do with my sister, and I can wear our father’s Red Sox cap and eat a hot dog in his name.

Will I get to do everything on my list? I doubt it. Even if I have the opportunity to get really old, I’ll never have the funds to do it all. Also, I have “Run a Marathon” on my list. Yeah, that shit might not ever happen. Since my distal pancreatectomy surgery, I still can’t run over 4 miles. Yet I also haven’t been training as much so….who knows, right?

Look how damn happy I am when I run or walk! This is a genuine smile. Maybe I can do the Jeff Galloway run/walk method for a marathon? I don’t know. We’ll see. In the meantime, I’ll keep on adding to that list. And I’d love to hear what’s on your “Life’s To Do List.” If Visit Maine is on your list, I have a couch to sleep on or a tent to sleep in. I got you. ❤

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Hold On Hope

Habits are hard to break, aren’t they? I’ve bitten my nails for my whole life and I’ve finally stopped doing that…mostly. But now I tear at my nails instead. It’s marginally better? I drink coffee each morning before I do much of anything else. It’s not really the best habit because I use sugar and creamer. I’ve cut my sugar in half, but I can’t seem to get any further than that. Honestly, it’s a habit I don’t want to break.

What do you do when your habits seriously hurt your health? Smoking, drinking excessively, eating fatty or sugary foods–not to mention addiction to illegal drugs or pain medication–are all activities many of us participate in, but when your health is deteriorating due to these habits, how do you stop?

What if you are the partner, friend or child of the person with these harmful habits? How do you help the person? When is the time you step back…or turn your back?

In August of last year, I wrote this: “But…shouldn’t there be a time when we finally say, ‘I will no longer take care of you. I will remain your partner until death, but I can no longer help you if you refuse to help yourself.'”

I’ve discovered that there is indeed a time when I will say these sentences and that time is now.

After a recent hospital stay for my husband due to a medication failure, a diagnosis of congestive heart failure and a disastrous and degrading (to me) doctor’s appointment, I am stepping back. It is now up to my husband to take control of his life. He knows all of this now. We’ve had a “come to Jesus” meeting as my old boss, Bill, used to say. I won’t attend any more of his appointments unless he is physically unable to drive. When he asked if I would go to an appointment if he asked me specifically to go, I told him I’d have to answer that later. Right now, the answer is “no.” I have a list of his medications, but it’ll be up to him to let me know if anything changes. When he asked me yesterday if he should pick up canned hash to have for breakfast the next day, I told him I wasn’t answering those questions anymore. He could make that decision, that choice. And he did.

Does all of this seem too personal to put out into the universe? It is. It’s also really difficult. I know I have at least one friend who understands everything I’m feeling right now, and maybe there are more people out there who get it, too. You’re not alone.

Marriage is hard. Relationships are hard. Parenting is hard. Co-parenting is even harder. Watching someone hurt themselves when you know it affects more than just themselves, is rage-inducing.

Over the past few weeks, I’ve found myself falling back into that bad habit of emotional eating. I’ve always done that when I’m angry, and these past 2 weeks certainly proved that. Fortunately, I’ve been able to attempt running once more, and that has helped my moods tremendously. I wish it could help everyone, but at least I’m able to find patience as the result of my exercise and can listen to my son and husband when they need me. At this point I’m not sure I can do much else.

I know for a fact that some people will read this and think I’m heartless or selfish and should do more to support my partner. “You’ve been married for 25 years! You don’t just sit back while their health is in jeopardy!” But what if your own health, albeit mental health, is in jeopardy? What about your child’s? The old man can do this. He is completely capable of making good choices. I don’t care if you think I’m heartless or selfish. I know I’m not. I love my husband. I will until I die. I am still here. But right now, he is the only one who can help himself. Will I give him a pat on the back when he does well? Absolutely! But will I criticize him when he doesn’t? Nope. I’ll do my damnedest to just nod my head and say “ok.”

These changes will be damn difficult for everyone in our household. I will hope for the best, but expect the worst, which is my usual M.O. 😉 Now enjoy this song about trying to find some hope in a messy situation. Hugs to you all.

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Thanks, Y’all

Tomorrow morning at 8:40am, a surgeon in Portland, Maine will be removing the tail of my pancreas along with those nasty precancerous tumors that are attached to it. He may also be removing my spleen, but we’ll keep our fingers crossed that won’t happen.

Having a distal pancreatectomy has been frightening to think about, but I’ve felt quite calm about it since yesterday. There’s nothing more I can do now, right? I have my workplace as settled as I can, I finished the password book for my family, and yesterday I ran my last 5K in what I expect to be at least 3 months.

Pretty happy to get the run in.

So as they’re prepping me tomorrow, I will pretend I’m back in that sensory deprivation tank I tried out a few weeks ago at Float 207. It was really lovely. I chose the purple light and I’m so glad I did.

But after imagining this calm space, I know I’ll be thinking of my boy, my family, my friends and all the incredibly kind words and thoughts you’ve sent my way. Thank you.

I’ll see you on the other side. ❤