To Smile or Not to Smile

Tonight, at a library function, I met someone that knew my brother. After we were introduced, she tilted her head slightly and with a big-ass smile on her face she said, “Your brother passed away last year, right?” She was still smiling. WHY THE FUCK WAS SHE SMILING?!?  I wanted to rip her throat out. If I had the strength, I would have taken my bare hands and ripped her mouth from her face. But I think I was too shocked to completely register my anger.  Why…what…why was she smiling? Really. Please tell me. Instead of scarring her for life, I quietly answered, without a smile on my face, “Yes. Yes he did.” She proceeded to tell me how she knew him and talked about the little dog that lived in my brother’s house but I could still only think about murdering her.

gold-mask-smiling

Has enough time passed that I’m supposed to be ok with someone asking about my brother’s death with a goddamned smile on their face?!? Am I EVER supposed to be ok with this? Because I can assure you that I am not nor ever will be ok with a fucking smile on your face when you ask about my brother or his death.  Losing him was the worst thing to ever happen to me and it has changed who I am. I miss him every damned day. I no longer have that person in my life who will recommend books, movies, and music to me and knows what I’ll like or hate, and will recommend shit I hate anyway. He’d do it just to push my limits but in a way that ended up opening my world just a little bit more. He was that person that made me laugh about things that you probably shouldn’t, but you know you can because it’s ok with him. He was the fucking life and laughter of our family and now he’s gone.

Forever.

So if someone asks you, “Do you smile when you ask about the large black hole in someone’s chest or that limb that they’re missing?”

The correct answer is NO.

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Birthdays

Tomorrow is my birthday. My first without my brother. One week from today should have been his 50th. This weekend we would have had a family party to celebrate our birthdays along with our dad’s birthday and Father’s Day, just like we’ve done for over 10 years. Phil and I have been celebrating our birthdays together for most of our lives. That’s what siblings do when their birthdays are 6 days apart.

So this year? No family party. I have no desire to celebrate and neither does my family. We’ll get together later in the month so we can hang and eat and play games outside. We’ll celebrate summer but not birthdays.

Typically, I’m pretty excited about my birthday and I think I’m still a little excited this year. I like gifts, good food and kind words. But I’m thinking more about Phil’s birthday this year. I want to celebrate him somehow that day. I know I’ll be thinking of him, probably post about him, but what else? If he was here, I’m sure I would give him black balloons or something with the grim reaper and bring him sushi or something else he loved to eat. But….what do I do now? Maybe buy his book that I haven’t purchased yet? Read something he would have, eat foods he liked?

Maybe just talk about him. Cry. A lot. Maybe try talking *to* him again? I did that the first week after he died. I didn’t know how to live without talking to Phil nearly every day, so when I was in the car or went for walks, I’d start talking to him. But I stopped. I think I was angry, still am. Angry at the world, at fate, at Phil’s stupid fucking heart. But I miss him so damn much. Still. I miss talking to him about books and movies and my kid. I miss his laugh, his view on the world, his very loud opinions about people and their stupidity. You know, with all the drama that surrounded my mom and her situation these past few months, my sister and I both often think, “Phil, you asshole, we can’t believe you missed out on all this shit!” I can still hear that mischievous laugh he had when he knew he got away with something. It was priceless.

I guess I’m celebrating Phil right now. That is if you can “celebrate” someone with tears staining your face and snot threatening to stain your shirt. And I guess if you’re reading this, then maybe you’re celebrating my big brother, too.

phil&ismilingIf you have a glass of dry red wine or Coke Zero or even a joint, then raise it to that handsome guy you see in the background there.

The world misses you, Phil. It will never be the same without you. You were one of the greatest. ❤

The Oscars

My brother and I started watching the Oscars together when I was in junior high. The first one I remember watching was when Out of Africa destroyed The Color Purple with their wins. Phil and I were shocked and really disgusted.  We were both like, “Wait…what just happened?”  A boring white film just defeated an amazing black film? Yup. That’s what happened. We both love Meryl Streep, but come on. Whoopi should have that and we all know it.

And that’s how some of our conversations would go. (Or we would talk about some of the outfits. Remember Bjork and her swan dress? We had our mouths open for that one then just kept repeating, “What the fuck?”) But mostly the Oscars was a way for Phil and I to eat yummy food, make fun of and drool over many of the Hollywood folks, and just talk.

Originally we tried to have Oscar parties. We would invite a few friends, usually his friends, and our partners. But that died off pretty quickly and it became just my brother and myself. And I loved it. I looked forward to this every single year. There were a few years, of course, when I lived in other states or Phil lived in southern Maine, and we didn’t even attempt to get together. But for the past 15 years, it’s been a pretty consistent event for us.  One year, Phil drove home from my place, only 3 miles away, and the snowstorm was so bad it took him 30 minutes to get home. A few years back neither one of us could get ABC on our tv, so we called each other and watched some of the Live Backstage stuff so we could find out who won and see what they were wearing.

Last year, we watched the Oscars from Phil’s hospital room. We got permission from the nurses to let me stay late and since Phil had his own room, they closed the door so we could be as loud as we wanted to be. I mentioned it in one of my blogs last year, how it was one thing that made me so happy last spring. We may have watched the Oscars from the hospital, but he made me laugh hysterically, as usual.

My brother was the one who typically watched every movie (or close to it) that was nominated. He’d keep me up on what was happening. We would have our ballots ready and whoever had the most right at the end of the night had bragging rights. It didn’t really mean anything, just something fun to do.

But this year?  How can they even show the Oscars when Phil can’t be here to watch it?

I didn’t realize how much I had been dreading the Oscars. I’ve been thinking about the food Phil and I usually made for it–homemade pizza or guacamole or veggie chili–and would I bother? And then Phil’s partner came over yesterday with a jar of homemade salsa that my brother had made. The grief hit me so hard that I dropped to my knees. Sobs wracked my body for about two minutes, then I was able to get up and move again.

And that’s when I decided that I would, in fact, still watch the Oscars, ballot in hand, while eating salsa that my brother made with his two large and lovely hands. I have no doubt that I will cry throughout much of the broadcast, just like I’m crying as I type this. I will think about the funny comments he’d probably be saying about the dresses and the people. And when the Academy shows the montage of all the people that have died last year, I will think of my brother and how his picture should be there, too.

codpiece

 

 

 

The Big Scary World

briaroceanI’ve always loved this photo of my son. He wasn’t quite 4 years old when it was taken. It always scares me a bit to look at it, thinking of my boy going out in the big wide world, having to face some challenges alone but also having to handle problems I never even imagined.

This past year my boy has had to deal with more than his fair share of sadness, despair and hard times. It’s one thing to think that I will never be the same after my brother’s death, but I’m 44 years old. To realize that my 10-year-old will never be the same is an entirely different story. He certainly has sad days but he also has more anger than ever before. Just this week, the topic came up about saying goodbye to someone before they died and my son started to cry and spit out, “Just like I never got to SEE someone and say goodbye!” I started to sob right along with him but held him tight against me. I told him how sorry I was, but I also told him that his uncle would never, ever forgive me if I had let my son see his uncle in the hospital hooked up to all of those machines. Phil didn’t want any of us to see him that way.

As a parent, I often wonder what my child can handle and what he can’t. I want to believe him when he says certain things don’t bother him or that he really can do this or that. He told me that sometimes when my mother lived with us, it was ok.  And sometimes it was, but the relief that kid showed when his grandmother moved out was unmistakable. And I don’t have any doubt that seeing my brother the way he was on that last day would have been horribly traumatic for my son, because it certainly was for me.

For whatever reason, I thought a lot about that day today.  I couldn’t tell you what triggered the memory, but there it was. I was actually in the dentist’s chair when it trickled through my mind and I had to hold back a sob while keeping my mouth open so the hygienist could clean my teeth. Really not the best place to have a mini breakdown.

Will my son always wonder and possibly regret not having those last few moments with his uncle? I tried to remind him this week of his last conversation with Phil. It was the same day I had my last back and forth conversation with him. He was in the hospital and my son was in Florida visiting his grandparents. I brought my laptop into the hospital and my brother and son talked via Skype. They chatted about the weather and my son showed his uncle some YouTube video about a video game and they joked around for a bit and they told each other that they loved each other. They said what mattered.

I know I don’t have this parenting thing pinned down yet because I’m still making mistakes every damn day and I’m not sure I’ll ever know what good or harm I’ve done to this poor kid. I’m just trying to listen to him and love him and do what I think is best for him. I think I’m doing and saying what matters.

That’s all I can really do, isn’t it?

 

Suddenly

I know. You want to sing it, don’t you? It’s ok. You can.

This morning started out as a typical Sunday morning. I slept a little late, watched a bit of tv with my boy, baked breakfast cookies for the week and started laundry. After a while, I decided I didn’t want to go out and walk on this dreary day, so I started to move furniture in the living room so I could work out there. I had to move my body but nothing too strenuous. As I was moving the hassock, my  husband asked me a question. I started to answer, then stopped. I tried to take a breath then apologized to my husband and started to sob.  He ran over to me and hugged me and just let me cry.

I had this sudden feeling of powerlessness and loss and sorrow. My mom is about to go through a pretty intense operation on Tuesday to help her circulation in her left leg. It’s a tough thing for anyone to go through, but a 71-year-old woman with a frail body and mind? It’s even tougher. I’m scared for her. I’m scared for us. I think she’ll make it through the surgery, but her mind might not. Will she know my sister and I when she wakes up? Will she know her son is gone? I don’t know.

I was missing my brother this morning, too. In the fall and winter, nearly every other Sunday my brother stopped by my house to have tea while I baked something. He would tease my son or chat with him while I washed dishes. I’d lean on one side of the counter while he sat on the other and we’d munch on goodies and talk about our week. Eventually we’d head into the living room and continue our conversation. It was a part of my week I always looked forward to.

I miss him so fucking much.

I wish he’d be at the hospital with us while we wait for Mom’s surgery to be over. He’d make us laugh and just be there. His presence just made me feel better. He’s part of my home.

After crying in my husband’s arms for a few minutes, I walked about the house and realized I just needed to be outside. So I slipped my headphones on, told my family I was going for a run and left. This is only the third run I’ve been on in the past month, but it felt ok. It was really difficult and I trudged more than I ran, but I refused to walk. I needed to sweat out some of this anxiety and sadness and just plant one foot in front of the other. So I did. And it was ok. I felt better than I had when I left my house. So that’s something.

On a side note, if you read my last post, you know I’m trying to get a counselor/therapist/someone to talk to. It hasn’t happened yet. I did make a few calls, finally got an appointment, but then cancelled it. Our electricity (like many in Maine) had been out for a few days last week and I couldn’t deal with doing one more thing. And no, I didn’t reschedule yet. I need to get Mom through her surgery and then we need to take life day by day after that. Am I making excuses? Probably. But the thought of adding one more thing to my life at this moment makes me want to pull my hair out. And I like my hair. So this will have to wait. For now.

If you’re feeling particularly generous or positive or hopeful on Tuesday morning, try to send a little of that my mom’s way, ok? I know she’s a tough ol’ bird, but a little extra optimism wouldn’t hurt.

That First Step

I’ve always said that blogging has been my own source of therapy. I write about my issues, get everything out of my heart and head and typically I feel better. I often get feedback from my readers, many of them being my friends, and usually I feel like my head is clearer, my body a little lighter and I’m not as alone as I thought I was.

But now….now I think blogging might not be enough.

As I’m writing this post, my brother has been gone for 11 weeks, 5 hours and 11 minutes. I think I hurt more now than I did that day. Everything was fresh and raw and horribly painful that day, but now I feel empty. Hollowed out. Lost.

For the past few weeks, I’ve known that I should seek out counseling. The combined stress of trying to care for my mother and dealing with my grief has been overwhelming.  One morning when my boss encouraged me to give the counseling program a call, I broke down in tears and told her I just couldn’t. My mom’s health has deteriorated very quickly in the past few months and I’m taking her to one doctor or another each week, sometimes twice a week. The thought of adding something new to my schedule broke me.

Then my best friend started nudging me, trying to get me to make that call. I put it off for another week then finally made the first call. This was just to set me up and give me a list of counselors I can call and try to meet with. My stomach hurt the entire time and I willed my voice not to shake. After the call ended, I put my head down on the table and cried. If it’s this difficult just to get a list of names, how the hell will I be at an actual session?

Now that I have my list, I still haven’t been able to call anyone. In fact, two days after getting the list I thought, “Ok. This is good to have, but I’m really fine. I can handle this.” I spent the afternoon cleaning my mother’s home, having lunch with her and taking her to the store. Sometimes when I spend time with Mom, I miss her. I miss the person she used to be. I felt like that this week, but I also tried to make the best of the situation. We chatted about food, my son, our cats and how beautiful the leaves were looking. “I can do this, ” I thought.

And then I spent the evening with my son. We’ve been watching The Flas71289d196e3604c520bb1fdd7bf20310h on Netflix. So, if you haven’t been watching season 3 of The Flash and intend to, skip this part now. *SPOILER ALERT*  In this episode, Cisco, one of my favorite characters because he makes being a geek look so damn cool, has been seeing visions of his dead brother, Dante. Cisco gets his hands on an artifact that messes with his mind and he eventually must seal the artifact away. But in doing so, he will never see his brother again. His rational mind knows that this image isn’t really his brother, but it doesn’t make the task any easier. So he has to choose–see his brother again or lose his brother forever but save his friends’ lives.

As Cisco makes his choice, I cover my face and sob into my hands. My son asks me what’s wrong, but I can’t answer. I’m sobbing so hard that it’s difficult to breathe, much less talk. My sweet boy then slides closer to me on the couch and hugs me. I end up crying on his shoulder, literally. I finally pull myself together after a minute and let my boy go. All he says is, “Uncle?” I nod. I apologize to him, but he said that it was ok. Then he takes off his shirt and says, “Here, Mom. You can just use this as a tissue.”

I love that kid so much.

So…after that little breakdown, all from a damn tv show no less, I think I might be able to make that phone call. Or I know I should.

I know I have to at least try. That’s all I can promise myself right now. But it’s a start.

 

49 Days

Yesterday I ran what used to be my usual 5k. It’s the furthest I’ve run in months.

Running used to give me joy. It was my time to just be with me and nature and music. It’s a time to push myself physically and very often mentally. But now running is just….meh.  Actually it’s more than that. It’s very difficult. It’s often impossible. And for the past two months it’s just seemed pointless.

Yet yesterday was different. I started out walking in the morning, but after only a minute I decided to try and run for at least the length of one song. I told myself it was ok if I couldn’t go far, just do what I can. But then my music kicked in and it was a different mix then my usual playlist. I let my Ipod shuffle through the thousand songs I have on it and come up with whatever. And what it came up with was my brother.

Phil made me a running cd a few years back and on it was just pure Philip. It was a mix of dance music and alternative stuff and angry songs and show tunes. It was awesome….except not to run to. I remember running to the playlist right after he gave it to me and I had to stop when I came to “Tonight” from West Side Story.

Not the easiest thing to run to.

But yesterday? Yesterday the shuffling of the music found all of Phil’s songs and it was wonderful. The dance music pushed me along, the angry music pushed me harder, and then, as I was running up a small hill I heard Maria calling out for Tony. I laughed out loud, shrugged my shoulders, and said “What the hell.” I listened to the entire song as I trudged along the road, thinking of my very unusual and eternally entertaining brother and I finished the run with a small smile on my face.

Today, though, was not like yesterday.  Missing my brother, I watched a short video I have of him because I needed to see him again. I needed to hear his voice, his laugh. I haven’t watched it since his “get together” six weeks ago. Later I took a short walk instead of a run. I thought of Phil just like I did yesterday, but ended up sobbing on the side of the road, bent over with my hands on my knees, trying to calm down and breathe.

Grief is a fickle thing. Who knows what tomorrow will bring? Maybe I’ll hear about the new movie, “It,” and it will make me think of Phil. Well, I know it will but whether it makes me happy, sad or angry is anyone’s guess. Or maybe I’ll have another dream about him but it will be a good one this time. Or maybe none of those things will happen and I’ll get up, take the boy to school, go to work and just go on.

And sometimes that is the hardest thing of all.

But somehow we manage do it anyway.