I tried to live today like I want my year to be. I wanted to run, read, do a little cleaning, watch a movie, spend time with my son and husband, and eat sushi–all activities I’d like to do for the rest of the year. I actually got to do all of those things, but nothing quite turned out the way I wanted or expected.

My 5k run wasn’t horrible as far as speed or conditions, but I felt absolutely uncomfortable in my body. If you watched me run, you probably thought I had major tics or was having a seizure. I kept moving my shoulders, trying to relax, tucking and untucking my shirt, adjusting my hat, and just flailing about. Nothing felt quite right. I could only focus for a few seconds here and there, but mostly it was just crappy. BUT, the sunshine was wonderful, little wind, and the 27 degrees felt much better than it sounds.

I didn’t read what I should have, but I read the last in a graphic novel series (Fence) that my son and I have been reading and it’s highly enjoyable. I feel no guilt whatsoever for not reading anything for work or my committee.

My son and I took down the outside Christmas lights and decorations. I wish I had a photo of my son taking down Darth Vader and hugging him close. It was damn adorable. My husband made us a lovely ham dinner for lunch and I got a smidge of vacuuming done, but no other cleaning took place. I ended up doing a bit of yoga instead and I think my time was well spent.

For a while everyone did their own thing, so I watched “Blackbird” starring Susan Sarandon. Have you seen it? It’s about a woman who wants to end her life because her ALS is starting to restrict what she can do. She invites her family over for the weekend so they can spend time together and say goodbye. Not really uplifting per se, but I feel very strongly about dying with dignity and wish every state in this country would allow people to die how they choose. Most people don’t even get the chance to die where they want much less dying how they want to.

I didn’t intend to watch this film today, but I borrowed it from the library a few weeks ago and it’s been sitting in front of our television since then. I couldn’t remember what it was about until I put it in and figured, “What the hell.” I’ll be honest, though, I haven’t finished it yet. I just watched a scene where the woman with ALS gives everyone a gift at the table, including her wedding ring which she gives to her husband. I was crying before we got to that part and completely lost it at that moment. I figured it was a good time to stop.

We picked up sushi from our favorite restaurant and brought it home for dinner. We decided we’d have a nice living room picnic and watch “Titans” on HBO Max. Of course, the one thing I really wanted was mistakenly left out of our order–miso soup! It always makes me feel better for anything that ails me. I whined for a few minutes then ate my absolutely fantastic raw fish and rice with my family. At one point my son and I argued and there was slamming of a door and sighing and generally feeling pissed off, and then the moment passed and we finished eating and we were ok. The three of us sat around after watching an episode and just chatted and laughed and enjoyed the moment.

My lovely son being the person he is, stopped and said, “You know this is great. Just hanging out, talking and laughing. This is really great.”

It is. It is really great. THAT is what I want this year and next year and every year I’m on this planet to be. I want it comprised of good conversation, lots of laughing and loving, good food, exercise, reading, time outside–preferably while feeling good inside this body but I’ll work on that. There will always be disappointments and disagreements and grief and stress and more crying than you would think is possible. But I also know there will also be at least a few surprises and encouraging words and acts of kindness and moments of happiness and laughing and many memories. There are so many good memories with those we’ve lost as well as with those that are still here. But there are more good memories to be made.

So let’s go make those good memories, ok? Even a great conversation over the phone or on Zoom can create a great memory. Let’s connect while we can and while we’re still here.

Hugs to you all, my friends.