If I’ve learned anything this past week, it’s that Alzheimer’s Disease slowly eats away one’s independence, dignity, eventually humanity. It not only destroys the individual, but it injurs and scars the caregiver and the family.
Last week ended with me losing my mother in a hospital (she can seriously boogie with that walker!) and also discovering at least 6 months worth of unopened mail in her home, including financial matters that should have been tended to. And this week began with me visiting the bank and crying at the desk of a bank employee.
Today I told more people about my mother’s condition. I told people that may only be on the periphery of her life, but ones that need to know why she doesn’t seem like her typical reliable self. My mother’s reputation has been in jeopardy for the past year, and maybe that doesn’t matter to some. But I know if my mother was in her right mind, it would matter to her. She’s been a respected citizen of our little town for nearly 50 years. She’s always been responsible. She paid her bills on time, mostly obeyed the speed limit and every single person I talk to says, “She’s such a sweet woman!” I don’t want anyone thinking less of her because I didn’t pay attention to that growing pile of mail in her living room. If I had done my job, I would have helped her open that shit at least two months ago.
But I didn’t. I didn’t want to. I was afraid. In the back of my mind, I knew my own responsibilities for Mom’s care would increase. I knew I would have to have uncomfortable conversations with Mom about finances–her last bit of true freedom. So I didn’t do anything. I didn’t do anything until….well….until I did. I had to stop putting it off and just ask Mom if we could organize her mail a bit. But something so simple is still not easy for me to do. To this day, I still dread the thought of my mother being angry with me. She put fear in all her children, and although I can’t speak for my siblings, she put the fear of disappointing her, in me.
So now when I need to ask my mother permission to do something, like open her mail, I’m waiting for my mother to bite back, to tell me “no” and that she has everything under control. But she never says that. Not anymore. She knows she no longer has everything under control. And as much as it pains me to say it, I guess that’s my job now.