death anniversary

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Grief Mode

This past weekend, I gathered beach items from my basement and my friend’s shed, picnic items from the depths of our fridge and cupboards, and along with my ailing husband off we went to my favorite state park. I have been waiting for this for weeks! Peaks-Kenny State Park is one of my favorite places in the world. It doesn’t look like much, but the memories I have there begin as a very young child and continue to memories from just two years ago. It’s a special place for me.

One of the best memories (and stories) I have is when I was maybe 5 (?) years old. My mom kept talking about this giant slide and playground at the beach. But my little ears heard “Giant’s slide”, which meant the Giant must live there, right? We drove up to the park, about a 30 or 40 minute drive (I thought it took FOREVER to get there) and as we climbed out of our car, I saw a boulder with a sandwich sitting on it. I ran to it and yelled, “The Giant left his sandwich!” My mother had no clue what the hell I was talking about. Eventually it was sorted out, and it became one of the most adored stories of my childhood.

Once my son was born, we visited this park most summers. I needed to show him where the Giants used to live! It’s a wonderful place to hang at the beach, play on the playground, go for a swim, picnic, and walk the trails. Although I knew my husband couldn’t do many of these things, he could still hang on the beach and we could have a picnic. But…for the very first time in over 45 years of visiting this park, when we got to the entrance we were told the beach was full and either we could wait in line with at least 6 other cars until some folks left, or just leave.

We sat in line for 30 seconds, and then I drove the hell outta there. I was devastated. I was angry. I was so damn sad! It just took SO MUCH to get to this point. I packed the chairs, the umbrella, and the cooler. I made the sandwiches and brought the bag of snacks (and bottle of wine, because come on!). I made sure we had towels and sun block and books. It felt a bit like taking my son when he was a toddler. I had to do everything, but I knew it would all be ok and it would be so fun. At least for me. My husband typically doesn’t walk well anymore and he honestly hates the sun, but he was doing this for me. It’s been the one thing I’ve asked him to do with me this summer that involved being outside. Just the ONE THING.

And that one thing was gone. I was “angry driving” at this point so I pulled over when we had cell service. I asked my husband to look for a beach somewhere near by because I was about to lose my shit. For a change, I didn’t cry. I was too pissed off at the world to do that. I knew if I had to drive home without some sun and swimming, I was going to sob for a long time and eat a carton of ice cream–and not that little pint bullshit but a half gallon.

Now, when I say I wanted to go to the beach, I mean a lakeside beach. We are in central Maine and the thought of driving to the coast on a Saturday in July is basically suicide. We would be one of 10 Maine cars with the hundreds of others all out-of-state vehicles. This is the only time we really have traffic here, and I’ll pass on that!

Amazingly, there was a beach 30 minutes away at Lake Hebron in Monson. I didn’t even realize Monson had a lake! I was still seriously glum, but I figured I had to try. I ate a tiny bag of sweet potato chips to get my blood sugar back up and then I was able to keep going. We joked about what kind of hell we might find at this public beach. “What’ll you do if it’s bad or super crowded?” my husband asked. I told him we’d get our sandwiches from the back and head back towards home, but hit up an ice cream stand before we got there. I was very ready to eat my feelings.

But instead we found this lovely place:

The beach was literally a large strip of dirt and a side patch of grass, along with several picnic tables, a changing hut and a porta potty. But it was just what we needed! There were only 6 people there, and 3 of them were children. The old man and I staked out a little corner of the grass, I went for a swim, we both ate lunch and read our books. And I drank two glasses of peach wine that just improved my mood. It was absolutely delightful.

Once we got home, after a stop at Dairy Queen, my husband wanted to feel useful and brought everything inside in one trip. Did he nearly fall to the ground? Yes. Could he catch his breath? Not at first. Did I yell at him? No, instead I spoke quietly which is typically worse for him. “Look, we just had a really good day, so maybe don’t ruin it by dying today, ok?” He set the bags down, caught his breath and we carried on.

Am I bummed that we didn’t go to Peaks Kenny? Yes. Very much so. I know that if I’m able to get there this summer, it will be by myself. I know I’ll still have a lovely time, but it would still be good to have another person. But I’m happy we took a chance to try out this little beach. We really didn’t have anything to lose at that point, so why not?

And I’m grateful for those few happy hours. You know, I’m sure my husband will live another 5, 7, or maybe even 10 years. But as I saw with my dear brother, nothing is certain. And after watching Phil slowly die over 9 years, I know the signs–the body not able to move well, the breathing difficulties, sometimes even the mind slowing down. I didn’t know the signs at the time, or I chose to ignore them. I didn’t want my brother to die, even though I knew he would long before me.

But Phil tried to squeak out little bits of living as much as he could. He’d buy and eat foods from other countries and regions because it was his way of traveling AND trying something new. He read “Les Miserables” by Victor Hugo because he wanted to make sure he read the 1,400 page novel before he died. He played with his nephew, spent time with his family and partner–he made memories for US.

That’s what I’m trying to do with my husband. We have nearly 30 years of memories, many good and many awful, But why stop there? He’s never been a very outgoing person, but I’m grateful he’s trying to do a few things with me so I have those memories when he dies one day. He might drive me batshit crazy sometimes, but I’ll still miss him when he’s gone.

It might seem morbid to be talking like this when Wal, my husband, could live another decade. But tomorrow is the 7-year anniversary of my brother’s death. I am in full grief mode right now. I feel such a horrid sense of dread and loss.

I’m at my kitchen table writing this, and I just want tomorrow to come so I can leave the house. These are the times I had a she shed to escape to.

Each year on July 23rd, I try to live. I try to live for my brother, to do something I’ve never done. Some years it’s just been trying a new food, other times it’s traveling with my son. But tomorrow? Tomorrow I’m leaving my house early, by myself, and visiting the Farnsworth Art Museum, where I’ve never been. My lovely library has a free pass patrons can use, so I’m taking full advantage of it. Hopefully the rain won’t ruin a nice walk near the ocean, but it’s ok if it does. Walking in the rain can be life affirming sometimes. Or it will make me feel more miserable. And I might like that better.

Hug the people you love, friends. Tell them you love them. This life goes by in a flash.

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Weighted to the Ground

This morning I drove to my hometown to get my hair trimmed. I go every 6-8 weeks and I often find it therapeutic. My dear friend, Lisa, has been cutting my hair for over 20 years. We were co-workers and friends before she began her shop with her business partner, Tanda. So when I get my hair cut and my eyebrows waxed, it’s typically a fun time–a time to catch up and a time for both of them to laugh as I swear and yell as Lisa rips my eyebrows off.

I was listening to my running playlist as I drove towards St. Albans. I had a pretty good run earlier and I wanted to keep my good mood going. Yet just 2 miles after I left my home, one of my favorite songs, “Little Bird” by Annie Lennox began to play. I’ve talked about this song before. It’s one that my brother added to one of two running cds he made me shortly after I started running 13 years ago, and we were both huge fans of both the Eurythmics and Annie Lennox. Since my brother’s death, it’s become a song that reminds me of him. I remember singing it with him in the car, and just this morning, I remembered how we would sometimes run our hands and arms out the car windows like a bird.

I had forgotten that little memory.

And since today is the eve of Phil’s death anniversary, it triggered the memories of that horrible day.

I was in his hospital room again, watching him trying to tear out his IVs so we wouldn’t see him hooked up to many machines. I was at the foot of his bed again with my sister, as we looked at the chart on his wall that showed how little he weighed–just 140 pounds at 6’5″. I was there again, holding his hand, telling him we came to say goodbye and that I loved him and my husband loved him and his nephew loved him. I was there once again, watching him nod his head over and over, like he was saying, “I know, I know.”

And then I was driving. I drove about 2 miles with no recognition this morning. None.

Needless to say, I sobbed much of the rest of the drive.

Yet just before I arrived at Lisa’s, I remembered my mother on that day. At one point Phil’s partner, Larry and I, went to talk to Phil, to convince him that it was ok not to live this way. It was ok to let go because we knew that was what he wanted, but it must have also been the scariest fucking thing to decide. (I remain steadfast in my knowledge that I saw the most courageous act that day when Phil made the decision to die.) Once he nodded his head and made that decision to be taken off of his life support, Larry and I went back to the private family waiting room. I remember my mother looking up at me with what I can only view as hope and saying, “What did he say?” I’m not sure what I replied exactly, but I think it was something like, “He doesn’t want to keep going.” But I do remember Mom’s face crumpling and shaking her head and lowering it to cry.

When I left Lisa’s, I just wanted to be with my mom. I went to her grave which is also in my old hometown. Once I got to the cemetery, I was jarred by the fact that the large, beautiful tree in front of the cemetery was cut down. “What the fuck?” I yelled. I realize the tree was probably dead or dying and would have toppled over and broken headstones. That better be why because it was really upsetting. Without that shade and just the glorious trunk, leaves and branches, the cemetery looks exactly like what it is–a field of stones. If a place like that is possible to get more depressing, it did.

I parked near Mom’s headstone, grabbed a blanket from my car, knelt down in front of her stone and wept. I talked to her, told her how much I missed her and Phil and Dad. I brushed off her stone and laid my forehead on it. I wasn’t there for very long. I just needed to see her name and pretend that she was there.

I stopped at Wal-Mart on the way home, feeling a bit dazed. I walked slowly in, bought dishwasher detergent and Tide Pens and left. As I walked across the parking lot, I saw this guy walking toward the entrance. I started to wonder if his day had been anything like mine. Did he spend part of the morning crying at his mother’s gravestone, laying his head on the warm stone, kissing her name? Did he wish she was there just for a few minutes to hold him, to listen to his worries and his frustrations?

I hope not.

But you never really know what others are going through, do you? Like Lennox’s “Little Bird,” some of those people you see each day may be “a troubled soul who’s weighted, weighted to the ground” and are just not able to fly.

Friends, in honor of my lovely brother, Phil, my “person,” I hope you take a little time this weekend and do something to feel like you are truly alive. Do something you absolutely enjoy, something to make you feel good. In Phil’s last few years of life, he couldn’t do much, but tried to live through food, whether it was making a fun international dish, or just enjoying whatever he ate or drank.

Tomorrow I will be hiking with two of my best friends. Typically, my son and I do something together, but now that he’s 16 with a job, license, and boyfriend, he’ll be working then hanging out with his lovey. We’ll both be spending time with some people that we love and that’s a huge part of what it means to live well.

Please, my friends, take a minute to hug, kiss, talk with or just touch someone you love this weekend, too. (With their permission, of course.) You won’t regret it.

Hugs and sloppy kisses.

❤

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“You do not have to be good.”

I’ve always enjoyed Mary Oliver’s poetry, and “Wild Geese” is one of her most popular ones for good reason. But it’s been a while since I read it, and earlier this week, I saw the first line of the poem, “You do not have to be good” in someone’s email signature. It stopped me from moving past the email, from doing much of anything really, except crying. What was it about that line that got to me?

I found the poem and like nearly every other time I’ve read it, I got stuck on the line “Meanwhile the world goes on.” I never hated that phrase until my brother died. The world was supposed to stop that day. I wanted what W.H. Auden wanted in his “Funeral Blues” poem, to “stop all the clocks, cut off the telephone.” How could the people on the planet be so cruel as to keep on living while my brother could not?

And now here it is, five years later today. This shit hole of a world didn’t stop. It’s certainly gotten worse, but it hasn’t stopped.

So, I went back to “Wild Geese” by Mary Oliver and read the poem again. I stopped at my usual line, then finally pushed on. I had never understood the poem, really, because I could never finish it. My anger and grief built a wall tall enough for me not to see or hear anything further after “the world goes on.” Now I finally see what the fuss is about.

“Wild Geese” is about living. It hasn’t been easy for me to really do that these past five years. I tried but have often failed. I did start learning to appreciate the little things in life that make me laugh or bring me joy–just watching dragonflies flit around my head made me so happy that I logged it in my brain to remember later. I have tried to cement a few friendships and relationships that I never, ever want to lose. But I also cut a few people loose that were not good for me. I want to and need to do more of that in the future.

I’m not much of a risk taker, so I won’t be skydiving or jumping off cliffs to swim with sharks. I won’t be traveling the world, only because I don’t have the financial means to do so. But I’ll at least get my passport so if a windfall of cash comes my way, I might finally be able to go to Europe or even see my lovely friend and soul sister, Becky in Mexico. But what else?

Knowing I was a step away from pancreatic cancer and also knowing that my big brother never got this second chance that I have now, I don’t want to piss it away. But unfortunately, bills still have to be paid and responsibilities still have to be tended to. Is there a way to fit in this new vigor for life into my current life?

I’ve recently begun training to be a volunteer for The Trevor Project. This will require one 3-hour shift per week and the training is 10 weeks long. It’s quite a process and I love it. I’m learning so much and honestly, it’s really difficult. But I’m so, so happy to do it. Watching my son and his friends try to live their lives and seeing how much pain some of them have gone through specifically from being part of the LGBTQ+ community, has given me the push to help more young people like them. And hopefully I can.

I’ve also signed up to train as a hospice volunteer. Training starts with that in the fall, with a 2-hour shift requirement per week. This has been a passion of mine for a while now, especially after talking and working with Mom’s hospice nurse. I’d like to be able to help patients and/or their families in any way I am able.

So…back to the “You do not have to be good” line. There is SO much in that line to unpack. First, I saw the sentence in a hospice worker’s email, and I think it’s one reason why it caught me off guard. I had forgotten the line and maybe when I read it before it just didn’t mean much to me then. But now it means everything. I think I cried because I immediately thought of my brother. Much of his life, especially his adult life, he lived with no excuses and no regrets. You didn’t like how he lived his life? “Fuck you,” he’d say and sometimes with a smile. To me he always lived as large a life as he could with what he had. He was loyal to his friends and family and loved us fiercely. He was a voracious reader and wrote humor, horror, romance and erotica, and sometimes all in the same story. He was known for his morbid and often perverted sense of humor that often had you shaking your head but also holding your belly from laughing so hard. He was a giant of a man with a giant heart.

But again, why did “you do not have to be good” resonate? Because Phil was like that. He wasn’t always “good” and certainly didn’t get on his knees to repent (he got on his knees for other activities), but he loved what he loved and loved whom he loved. And he lived. For those few 49 years and 33 days, he fucking lived. No excuses. No regrets.

I’m trying to be like my big brother. I want to fucking live, too. Volunteering at these two places is one way I can live more like I want to. It may seem like this isn’t me jumping out of an airplane, but it sort of is. This is me putting my heart out there and seeing people when they are at their most vulnerable–asking for help because they don’t feel heard or understood or loved and just want to die, and those that are actively dying or watching their loved ones go through that process. I suppose I’m trying to save lives with one position and help those die with dignity with the other.

Will these activities make me happier? Eh, I don’t even like that word right now. That’s a blog post for another time. But I think the work will help me feel fulfilled. Being a librarian was always what did that for me but being a library director is not the same. I’m fortunate to work in a small, rural library so I still get to know and help people, but nothing like what I did before. Now there’s too much of the bureaucratic bullshit and that part sucks. Right now, though, it’s where I need to be.

There are other things I need to do to make my life a better one: getting rid of more “stuff,” finding my own space in my home, eliminating more debt, writing and reading more poetry, keeping up those forever friendships and relationships, and having more new experiences. Will I have time or energy to do it all?

Probably not, but I have to try, right?

Not just for me, but for Phil. At 49 years and 39 days old, I am officially older than my big brother. It’s time for me to try and live, to prove to him and to myself, that I don’t waste this “one wild and precious life.” (Seriously, Mary Oliver was kick ass, so check her stuff out.) Sometimes that might mean I take a walk to observe the leaves dancing in the trees or to see that momma turkey and her adolescents wander the field instead of finishing a book I was supposed to read for work. Or it might mean giving up an evening of relaxing to talk with a friend who needs a shoulder to lean on. Or it could mean that I make some bigger changes in my life and figure out who Holly is.

Thanks for coming on this journey with me. I wish Phil were here, too. I know he’d have a lot to say about it, and it would probably be a bit sarcastic and/or hilarious, and also said with love.

If you ever met my brother, I hope you think of him today. I won’t let him be forgotten, so even if you didn’t know him, think of him anyway. Just know that you probably would have liked him. I certainly did.

Phil’s potholder codpiece.

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Two years

So much has happened since you’ve been gone, dear brother. Mom is in a nursing home now. She kind of lives in a nice world where most people are still alive, including you. At least most days. And Dad’s gone now, too. Maybe you know that? Or if what you and I believed is true, then I’m just talking to folks that read this, not you? You no longer exist. And yet I can’t stop talking to you and wondering what you would think about this and that. The human brain is weird, no?

Your nephew has grown a half a foot since you had to leave. He’s just 3 inches shorter than me, and should be your height by his 14th birthday. He’s liking horror movies more now and has such a morbid sense of humor–just like you. Your niece is pretty busy with her kiddos and she’s finally getting married to her girlfriend. Our sister has to have a new knee soon but still no bionics. Doesn’t that suck? And yeah, I broke my arm. That week after I did it, I imagined you here, helping me along with Larry, but also shaking your head and calling me a “klutz.” Then shuddering when I showed you the photo of the plate and screws in my arm.

So do I still miss you every damned day? Yup. And I’m trying so hard to live the best I can without you, to try new things, to live a life like you did for your first 40 years. (Well, maybe not quite as risky as a few of those years, Phil!) I know those last 9 were pretty shitty, but you lived as best as you could and you helped raise your nephew during that time so I’d say you did pretty well.

Last year on this day, the boy and I were in Boston to see the city and meet dear friends. We decided that we would try new things and live large on this day for you. This year, having one wing, I didn’t really want to go too far. So we went to Belfast and ate different foods, bought a new card game and walked the Harbor Walk. It wasn’t as exciting as last year, but it didn’t need to be. We just needed to do something new and different and talk about you. Like we do every day. It’s impossible not to talk about you since still nearly everything reminds me of you. I imagine everything always will.

I love you. I miss you. I wish you’d visit me in my dreams more often. I’ve only had two that I can remember since you left. It nearly wakes me up when you’re in my dreams because I’m so fucking happy to see you. When I’m fully awake, I’m both devastated and ecstatic if that’s at all possible.

Good night, dear brother.

I wish you were here.

Phil with my boy back in 2009