Author: hollyida

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Dysfunction Reports

If you’ve ever had to apply for disability for a physical ailment or diagnosis (Social Security Disability Insurance–SSDI), you know that you need to fill out a shit ton of paperwork. Oddly, I typically love doing paperwork. I love surveys and questionnaires and I’ve helped my husband fill out many kinds of paperwork throughout our entire marriage. It brings me a little joy.

But the function reports you fill out for Social Security are so…depressing. The questions asked are to show the government what you *can* do, but also what you are no longer able to do. As we went through the list of questions, my mood dipped lower and lower and lower. He talked about how things have changed. He used to make dinner on a regular basis, and still does occasionally, but now he has to do it sitting down on his walker. Often he can’t stand for more than 5 minutes, and if you’re boiling or frying something, it would be silly (and dangerous) to sit in another room if you can’t see or hear what’s happening on the stove.

On the form, there’s a question that asks you to describe your typical day. As Wal described his day, and the amount of dozing and napping and sleeping that he does, I just got really sad. Between his heart not working well, his chronic pain and the medications he has to take to keep living, he is *literally* sleeping much of his life away.

Then we got to the question about what he can no longer do. He listed off a bunch of things, first the work-related activities, then many of the tasks at home he can’t do any longer. This is when I cried just a bit, and he started to sigh more.

As you age, you expect things to change. You expect to not be able to physically accomplish what you once did. But when you’re ill, you realize that you can’t do what you did just last year. Or even 6 months ago. I don’t feel like I’m been particularly naive about Wal’s sickness, but crikey. Filling out these forms and seeing in black and white how far he’s deteriorated, was still a surprise.

Yet when the opportunity came up to visit with a dear friend and for Wal to meet my friend’s family for the first time (and go to the coast!), he was up for the challenge. I drove us to Bar Harbor, and I loved how he kept the window down and did what I typically do when we go to the coast. He inhaled deeply as we neared the ocean and exclaimed how good it smelled. The salty sea air always rejuvenates us!

We met our friends at Acadia National Park and I rode up to Cadillac Mountain with them as Wal drove to the restaurant we would meet at for dinner. (Walking at all on Cadillac was not something he felt he could do.) I had a lovely time with my sweet friends, then we all met at the restaurant where we ate, drank, talked and had a good time. It felt like years had been rewound and my husband was more like he used to be. Not the chronically ill man who is in near constant pain, who gasps for breath when he naps, who *has* to nap, whose hand tremors often make him have to eat with his left hand instead of his usual right. He was just…Wally.

After we left our friends, we did a quick stop at the grocery store to pick our boy up something for dinner. But as we made our way to the check out, it seemed like Wal’s energy was draining and his pain was ratcheting up. The way he walked started to change, the grimace formed on his face, and he was back to the man who can no longer work, the man who doesn’t eat much anymore, the man who can no longer take short walks with his wife. By the time we arrived home 90 minutes later, it was an effort for him to get out of the car. It was time to take his medications and hope his pain would not be so bad through the night so he could sleep.

Then it was back to me watching his chest to make sure he was still breathing, back to counting out his meds and placing them into the pill caddy, and back to helping him in the shower.

But…it was the perfect respite for both of us. He felt like he was living again, and I got to remember what life used to be like. Our days may not be like they used to be, but that one evening gave us our lives back for a little while and it’s made both of us grateful for those fun and sweet moments we still have.

And the kind, kick-ass friends we have in our lives.

Thank you, Jo, Ray & Freddie for a fantastic evening. And thank all of you friends and family who continue to support us by listening to us, loving us, and lending us a hand when we desperately need it.

I feel very, very lucky to have all of you in my life.

*hugging you tight*

❤

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Difficult Conversations

This weekend, my husband and I had “the” conversation. Within any marriage or long-term relationship, there are many types of big, important discussions. Before we were married, I told my husband I did not want children. I knew that he did, but it just wasn’t something I wanted when I was in my 20s. He loved me enough to marry me anyways. Then in 2002, five years after we got married and a few months after my stepfather died unexpectedly at the age of 58, Wal and I were sitting in a Wendy’s in Bangor. We were reflecting on my stepdad’s life and talking about my mom’s future, when I blurted out that I think I wanted kids after all. My family is so wacky and weird and wonderful, why wouldn’t I want that to continue? Of course then it took 4 more years until my boy was conceived due to my endometriosis, but he was well worth the wait.

We’ve had other conversations that should have been tremendously impactful for us both, but often they were not. Talking about debt, sharing household chores, and parenting are the first ones that come to mind that have had only short-term effects.

But in the past few years, Walter and I have talked a lot about end-of-life. This is partially due to my brother’s death, then my parents and my father-in-law. We wrote out our living wills the month after my mom died in 2019, which happened to be just three months before Wal ended up on a ventilator and in a coma. We’ve both changed our living wills a bit since then, having learned the hard way what we want and don’t want our bodies to go through.

This past year, though, has been particularly difficult to talk about death when it seems like it’s much nearer than we thought it would be at this time in our lives. I may have been volunteering for hospice for nearly two years now, but it’s so different when it’s your own spouse. This weekend, my husband admitted that he’s finally seeing how sick he really is. He realized that some of what he was able to do last summer he can no longer do. “I hope I’m here at this time next year,” he said to me last night. We started to talk about his beliefs after death, how he’s not scared to die but doesn’t want to. But also how tired he is. When you have congestive heart failure, your heart WILL stop working at some point, and right now, his heart is working overtime.

Most of the time I have faith that my husband will live another 6 or 7 years, maybe even 10. (He does have incredible longevity genes, and most people in his predicament would have been dead a year ago.) But after the week we’ve had, with constant pain, tremendously high blood pressure and heart rate (but not quite enough to go to the ER), and high blood sugar levels, I’m not so sure about the number of years anymore.

There was a LOT of caregiving to do this past week due to a wrist injury Wal incurred a month ago. It gave me flashbacks of when my mom lived with us for those two short and exhausting, stressful months. And possibly a glimpse into our future? I can already see that I will either need to change my work schedule or honestly, not take care of myself as much as I do right now. I’m fortunate that I have the time to walk before work (unless I don’t sleep well, which is happening every other night lately) and I sometimes walk at lunchtime while the weather is still good, then workout at the gym after work a few nights a week. But that’s leaving my husband alone a lot. Am I frustrated by his lack of social circle? You bet your ass I am. I can only encourage so much, then I have to let it go. But…the guilt does set in. He’s told me before that he wants me to live my life but then admits he gets lonely.

And I keep thinking, “What if this really is his last year?”

I made time for my parents and brother in the last years of their life. I didn’t realize it was the last year for my brother, but I made time because I loved being with him. I knew my parents’ time was short, and I wanted to make sure I did right by them. And although I often enjoy time with my husband, this just feels complicated. Maybe because there’s a lot of anger towards him for not taking care of himself for our entire marriage (and before)? And because our son won’t have his dad around for much of his adulthood? Probably.

But…I still want to do right by my husband. We’ve been together for 29 years, married nearly 27. When you’ve been with someone that long, you know so much about them, including when they are scared or hurt. I have a lot of empathy for people, but I feel the pain and fear and disappointment that my husband is feeling. So I’m trying to make his life AND death to be whatever he wants it to be, but it’s not easy. I often feel helpless and frustrated and sometimes I just want it to all be over.

And then I think about this goofball, and say “Nah. You can keep going, old man.”

Maybe a few more years? ❤

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Dragonflies Dancing

Have you ever been on a walk or run or bike ride, and had dragonflies flitting and dancing about your head? It’s truly one of the most glorious experiences.

Photo by Richard Ricciardi

This evening, I was taking a walk to get the rest of my steps in. It was warm but not as humid as earlier in the day. I was listening to a cute romance novel, enjoying the sun on my skin and walking at a steady but not rushed pace. Just enjoying myself.

As I walked along, I saw the occasional dragonfly scooting past me, until I saw at least a dozen dragonflies flitting back and forth, dancing, playing, even watched one flip upside down in mid-air then right it self again. I could not help but gasp with awe and absolute delight! I tried to take a photo, but that wasn’t happening. Instead I took a selfie to show how happy and content I was feeling at that moment.

Seriously. Look at me! I was just feeling and looking good. Almost glowing.

I’m trying to capture these moments, trying to enjoy all the little things life can offer. Something as beautiful as a flight of dragonflies should be celebrated, you know? We won’t always have “big” momentous occasions or activities to acknowledge like vacations, graduations, new homes or jobs. Instead our lives are typically filled with just seconds of glee and wonderment, yet those seconds really do add up. It doesn’t always feel like it, I know. I often feel like I’m swimming in sorrow and grief, and you might, too. Or maybe you just feel overwhelmed with what life has been throwing at you lately. I get it. You know I do.

Try, please try, to find something that lifted you up for a minute this week. Was it that cup of coffee that tasted extra good today? Maybe you had a good hair day one day this week? Saw a cool cloud that looked like a heart? Or maybe it was that text from your friend you hadn’t heard from in a while.

Earlier today I sat on my porch with a smutty book and a glass of peach wine. It was bliss. And I knew it, acknowledged it and heaved a contented sigh.

What about you? What are some moments of delight you’ve experienced lately? If you haven’t experienced any, please let me know. I’m happy to send you cat or dog cuteness videos. Or giraffe videos. Giraffes are the best!

Hugs to you all.

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And I live…

I took the day off to live. The anniversary of Phil’s death requires me to do so. I didn’t go ziplining or travel to Europe, although both are on my bucket list. I did what I had intended to do today. I visited the Farnsworth Art Museum, stopped by the Rockland Public Library, found a kick-ass coffee shop and drank ambrosia (the actual name of the coffee with espresso), people-watched, took a walk in the rain, and cried. Not necessarily in that order.

There were some amazing pieces by Jamie Wyeth, especially the screen door sequence. The last two photos here are of the first in that sequence, along with a description. “In capturing a fleeting moment, Wyeth reminds us that our friends and loved ones may be in our lives only briefly.”

So. Fucking. True.

And yes, I was one of those people who stood in front of a piece of artwork and wept.

So much of Wyeth’s work is quite dark, and I couldn’t help but think, “Man, Phil, you’d love this shit!” There were comparisons to some of his pieces and Hitchcock’s film, “The Birds” (a film I watched with my brother several times) as well as Kubrick’s “The Shining” (also saw with my brother, but only once because he scared the bejezus out of me.)

The Farnsworth not only features the Wyeths’ works, but also a variety of artists. There was this great display of collaborative artwork by students. The pieces that are in blue, one that features the gun with “why why why” all over it was a piece by a high school student, as well as the other bluish piece that had one line that got to me. “My biggest fear is I will be forgotten.” Right now that’s not my biggest fear, but forgetting my brother is.

I’m sure that’s part of the reason why I write about him so much, why I continue to grieve him. He was such a fun and weird and interesting human and I wish everyone I’ve ever known (or never known) could have met him. I need him to live on in some way. And I guess this is my way. Because now it’s 7 damn years without him on this planet, and it’s just…wrong.

So take a moment, and if you ever met Phil, think about him. His laugh, his morbid and off kilter humor, his love of horror films, his love of his family and friends. And if you never had the great pleasure of meeting my big brother, I’ve told you a lot about him. Here are a few photos, too. Just take a few seconds and think about him. Let him live for another few moments, would you?

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Grief Mode

This past weekend, I gathered beach items from my basement and my friend’s shed, picnic items from the depths of our fridge and cupboards, and along with my ailing husband off we went to my favorite state park. I have been waiting for this for weeks! Peaks-Kenny State Park is one of my favorite places in the world. It doesn’t look like much, but the memories I have there begin as a very young child and continue to memories from just two years ago. It’s a special place for me.

One of the best memories (and stories) I have is when I was maybe 5 (?) years old. My mom kept talking about this giant slide and playground at the beach. But my little ears heard “Giant’s slide”, which meant the Giant must live there, right? We drove up to the park, about a 30 or 40 minute drive (I thought it took FOREVER to get there) and as we climbed out of our car, I saw a boulder with a sandwich sitting on it. I ran to it and yelled, “The Giant left his sandwich!” My mother had no clue what the hell I was talking about. Eventually it was sorted out, and it became one of the most adored stories of my childhood.

Once my son was born, we visited this park most summers. I needed to show him where the Giants used to live! It’s a wonderful place to hang at the beach, play on the playground, go for a swim, picnic, and walk the trails. Although I knew my husband couldn’t do many of these things, he could still hang on the beach and we could have a picnic. But…for the very first time in over 45 years of visiting this park, when we got to the entrance we were told the beach was full and either we could wait in line with at least 6 other cars until some folks left, or just leave.

We sat in line for 30 seconds, and then I drove the hell outta there. I was devastated. I was angry. I was so damn sad! It just took SO MUCH to get to this point. I packed the chairs, the umbrella, and the cooler. I made the sandwiches and brought the bag of snacks (and bottle of wine, because come on!). I made sure we had towels and sun block and books. It felt a bit like taking my son when he was a toddler. I had to do everything, but I knew it would all be ok and it would be so fun. At least for me. My husband typically doesn’t walk well anymore and he honestly hates the sun, but he was doing this for me. It’s been the one thing I’ve asked him to do with me this summer that involved being outside. Just the ONE THING.

And that one thing was gone. I was “angry driving” at this point so I pulled over when we had cell service. I asked my husband to look for a beach somewhere near by because I was about to lose my shit. For a change, I didn’t cry. I was too pissed off at the world to do that. I knew if I had to drive home without some sun and swimming, I was going to sob for a long time and eat a carton of ice cream–and not that little pint bullshit but a half gallon.

Now, when I say I wanted to go to the beach, I mean a lakeside beach. We are in central Maine and the thought of driving to the coast on a Saturday in July is basically suicide. We would be one of 10 Maine cars with the hundreds of others all out-of-state vehicles. This is the only time we really have traffic here, and I’ll pass on that!

Amazingly, there was a beach 30 minutes away at Lake Hebron in Monson. I didn’t even realize Monson had a lake! I was still seriously glum, but I figured I had to try. I ate a tiny bag of sweet potato chips to get my blood sugar back up and then I was able to keep going. We joked about what kind of hell we might find at this public beach. “What’ll you do if it’s bad or super crowded?” my husband asked. I told him we’d get our sandwiches from the back and head back towards home, but hit up an ice cream stand before we got there. I was very ready to eat my feelings.

But instead we found this lovely place:

The beach was literally a large strip of dirt and a side patch of grass, along with several picnic tables, a changing hut and a porta potty. But it was just what we needed! There were only 6 people there, and 3 of them were children. The old man and I staked out a little corner of the grass, I went for a swim, we both ate lunch and read our books. And I drank two glasses of peach wine that just improved my mood. It was absolutely delightful.

Once we got home, after a stop at Dairy Queen, my husband wanted to feel useful and brought everything inside in one trip. Did he nearly fall to the ground? Yes. Could he catch his breath? Not at first. Did I yell at him? No, instead I spoke quietly which is typically worse for him. “Look, we just had a really good day, so maybe don’t ruin it by dying today, ok?” He set the bags down, caught his breath and we carried on.

Am I bummed that we didn’t go to Peaks Kenny? Yes. Very much so. I know that if I’m able to get there this summer, it will be by myself. I know I’ll still have a lovely time, but it would still be good to have another person. But I’m happy we took a chance to try out this little beach. We really didn’t have anything to lose at that point, so why not?

And I’m grateful for those few happy hours. You know, I’m sure my husband will live another 5, 7, or maybe even 10 years. But as I saw with my dear brother, nothing is certain. And after watching Phil slowly die over 9 years, I know the signs–the body not able to move well, the breathing difficulties, sometimes even the mind slowing down. I didn’t know the signs at the time, or I chose to ignore them. I didn’t want my brother to die, even though I knew he would long before me.

But Phil tried to squeak out little bits of living as much as he could. He’d buy and eat foods from other countries and regions because it was his way of traveling AND trying something new. He read “Les Miserables” by Victor Hugo because he wanted to make sure he read the 1,400 page novel before he died. He played with his nephew, spent time with his family and partner–he made memories for US.

That’s what I’m trying to do with my husband. We have nearly 30 years of memories, many good and many awful, But why stop there? He’s never been a very outgoing person, but I’m grateful he’s trying to do a few things with me so I have those memories when he dies one day. He might drive me batshit crazy sometimes, but I’ll still miss him when he’s gone.

It might seem morbid to be talking like this when Wal, my husband, could live another decade. But tomorrow is the 7-year anniversary of my brother’s death. I am in full grief mode right now. I feel such a horrid sense of dread and loss.

I’m at my kitchen table writing this, and I just want tomorrow to come so I can leave the house. These are the times I had a she shed to escape to.

Each year on July 23rd, I try to live. I try to live for my brother, to do something I’ve never done. Some years it’s just been trying a new food, other times it’s traveling with my son. But tomorrow? Tomorrow I’m leaving my house early, by myself, and visiting the Farnsworth Art Museum, where I’ve never been. My lovely library has a free pass patrons can use, so I’m taking full advantage of it. Hopefully the rain won’t ruin a nice walk near the ocean, but it’s ok if it does. Walking in the rain can be life affirming sometimes. Or it will make me feel more miserable. And I might like that better.

Hug the people you love, friends. Tell them you love them. This life goes by in a flash.

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End Times

Thursday morning I awoke with an anxiety attack. I don’t know what I had been dreaming, but my first thought was about my son’s ankles and the fact that they’ve been hurting him for a few weeks, shortly after he started playing football. That one thought spiraled into worries about new shoes and getting him a new doctor and worrying about the health of our current doctor and how do I pay for my last medical bill and I hope the food bank has more produce next week because this week was a bust and we really need more vegetables in the house and I need to stop thinking, stop thinking, stop thinking.

Yeah.

Hello, 4:30am.

So I got up, drank coffee, ate half a banana, and took a 4 mile walk while listening to a gloriously smutty romance novel. (Unfortunately Yours by Tessa Bailey–Anything by Bailey is fun and often smutty. Delicious!) My hip was screaming by the end of the walk, but at least I wasn’t concerned about money. The time outside and moving my body was enough to clear my head and make a plan to at least have my son’s ankles wrapped before that day’s football practice. I just refused to worry about the other stuff the rest of the morning. It was just too much to think about. It was just too, too much.

The thing is…life is not horrible. It’s hard for sure. It’s a struggle. It’s scary not knowing…anything really. The political climate of this country does not help matters. My son, my beautiful child, is a political science/government/history junkie and so we tend to read, listen and watch more news than ever before. But I have now had to stop, because I can’t stop freaking the fuck out.

I’m ashamed to say that when I heard there had been an assassination attempt on former President Trump, I was disappointed to hear that it was only an attempt. The anger I have at Trump for installing so many jackasses to the Supreme Court and his party’s disgusting Project 2025 plan, made me hope for his death. And I’m not happy that I had that reaction. There is no place for political violence.

But I have to be honest in how I feel. We’re living in a country where many women no longer have a right to choose what they do to their own bodies, and where librarians and teachers are harassed and called “groomers” for providing access to books that represent children like mine.

This isn’t the same country I was born and raised in. It’s turning into a hateful place, where people no longer feel safe to speak how they feel about a political candidate unless they are in a group of like-minded individuals. And I am speaking about both Republicans and Democrats. As a liberal Democrat living in a small conservative town, I rarely feel comfortable expressing how I feel here. When you see Trump signs or F*ck Biden signs on just about every road, how else should I feel? But I also know of librarians that are Republicans that will not say a word about politics for fear of their colleagues damning them for their views.

You know, I rarely talk about politics publicly. I work in a public library so I keep my mouth shut while at work (except with some colleagues), and at home we do talk about politics but sometimes it’s just too exhausting. It is incredibly difficult to live with someone who disagrees with you politically. So most days we keep it to a minimum. That’s how we’ve remained married for nearly 27 years. Yet our son, who knows more about American history than we do, and is thoughtful and knowledgeable about our current political system, will bring facts and a sense of calm to our family discussions. (Facts and calm to political discussions. Isn’t that something?) I see my son and much of his generation as a beacon of hope. When they are of age to vote and run for office, I hope we will begin to see a change in our world for the better.

And hope is what we need right now. All of us. For a variety of reasons.

You know, I sent this photo to a friend recently who is no longer speaking to me. I’m not sure why they’re not speaking to me, but it may have nothing to do with me. It was a message to let them know that I have hope that our friendship will remain and hope that our lives will get better, but also just to say that I’m still here.

And I am. I’m here. And so are you. And I’m so happy and thankful for that. So let’s get through another night together. I know we can make it through. ❤

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Your Success

Dear Phil,

Happy birthday, big brother. I miss you.

I continue to have conversations with you, but Phil? I’m scared. I’m not sure how you’d reply anymore. There are times when I think I’m forgetting you, forgetting what foods you liked or what you thought was funny and what was just ridiculous. But…it’s been 7 years so maybe your tastes and thoughts would have changed anyway. We all evolve, or hope to, right?

I’ve been watching the latest season of Bridgerton, and often wonder what you’d think about the show. You’d probably watch it since you got me into Downton Abbey, but this is much steamier and more diverse and just plain delicious! There’s gossip and sex and beautiful gowns and manipulation of pop tunes into classical dancing music. One of the latest storylines has a slightly larger than average sized woman as the romantic interest. You know how I love romance stories with larger women! I just watched the sex scene with the woman and her love interest, and yes, she’s rounder than your average actress, but for fuck’s sake! She’s gorgeous, flawless skin, beautiful breasts. Where are the women with back fat?!? I want to see a middle-aged or older actress, with rolls for a stomach, fat thighs and a cottage cheese ass. AND I want to see the man (or another woman, I don’t care) tell her how fucking beautiful she is. THAT is what the world needs to see.

*current rant over*

I can hear you laughing now. Agreeing with me, but laughing. “Calm down, Chuckles.”

Hey, the Bangor Pride Parade is this Saturday. The family is going–the kid and I, Bon, Am & Ky, too. Remember the last one we went to? It’s bigger now. The only thing I remember about that one in 2017 was that we needed a seat for you. You were gonna be there, one way or another, so I got out my lawn chair and my friend, Trish, helped get us settled or helped us leave. I don’t remember which now. I just remember being there with you, then getting grocery store sushi afterwards and eating at my house. Looking back, that was the day you tried to tell me you didn’t have a lot of time left. But I refused to believe it.

Anywho, did I tell you I’ve been going to Planet Fitness recently? I signed up with the boy in early May and I’ve been going faithfully 2-3 times a week. I’m not losing any weight, but I’ve gotten stronger and damn, I’m getting muscles! And talk about muscles?!? The eye candy at this gym is bananas. Plus the wide range of ages and shapes and sizes makes me happy. I don’t feel like a completely weak, old fat ass when I go there.

For my birthday I went out and bought clothes that I couldn’t afford but fit better. I’m sick of trying to fit into clothes that fit me a few years ago. Fuck it. I’m healthy and fit, so I might as well be comfortable and stop squeezing into things that make me feel fatter and more like a sausage than like the woman I am. Don’t you love that it’s taken me 51 years to finally get to the “fuck it” stage? But we both know it’s hard for me to hang onto that. Our self-esteem was always so wrapped up in our weight, both as kids and adults. I’m trying to shed that shit, but it’s not easy. I’ll keep trying though.

I was talking to one of my colleagues about you recently. I was telling her how sometimes I look at your Goodreads account to see what books you read that I haven’t. I want to read more of what you did, yet lately I’m reading mostly romances–straight, gay, lesbian, doesn’t matter. As long as it has good sex scenes and a happy for now (or forever after) ending, then I’m on it. There aren’t enough romances with middle-aged people, though. So many of them are people in their late 20s or early-mid 30s. We need more novels about people in their 50s who want to get laid or have their own happy for now ending. Most books with characters this age are dramatic or depressing. I don’t want a love story. That shit can mean a dead partner at some point. Too much reality. I want a friggin’ romcom with a woman who has the battle scars of a typical middle-aged woman–stretch marks, a possible c-section scar, tattoos, and all the mental and emotional baggage that comes with age. That has all the markings of a good romcom, doesn’t it?

So…I hate ending these letters, you know that, right? But I wanted to tell you something. I’ve told you about the Ralph Waldo Emerson quote that says, “…to know even one life has breathed easier because you have lived. That is to have succeeded!” Much of the rest of the quote is about appreciating beauty and to laugh a lot and all of those other things that we try to do. But I wanted to make sure you know, and I hope, hope, hope you knew, that you were tremendously successful. You made so many of us laugh and feel loved and breathe easier. Honestly? I feel like I haven’t been able to take a breath since you left.

I love you, my favorite brother.

Hugs & sloppy kisses,

Holly

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My Favorite Month

“I wonder what it would be like to live in a world where it was always June.” –L.M. Montgomery

I LOVE June.

I personally think June is one of the best months you can spend in Maine. Summer is just beginning but the temps are in the 70s, low to no humidity. Everything is green, the lupines have bloomed and it’s just fucking gorgeous. It’s the end of the school year and high school graduation for some. Like January, it feels like a time for new beginnings, fresh starts.

Typically it’s an emotional month for me, too. June is not only my birthday month, but my brother’s, too. It’s a time when we would celebrate our birthdays together, along with my dad’s birthday and Father’s Day. This year, though, I’m canceling any kind of birthday celebration with my family. We’re heading to one of our local Pride parades instead. We’ll celebrate Pride together and to me, it’ll feel like we’re celebrating my brother. Which is what I’d rather do.

Will I still celebrate my own birthday? You bet your ass. Like I’ve said in previous posts, I’ve always loved my birthday but have often been disappointed by others in their lack of celebrating my birthday. So fuck ’em. I might not have a road trip planned like last year’s big 5-0, but I’ll do what I want and create my own celebration.

This month, I’ve tried to take time to really see things around me that bring me joy. That Kermit lawn ornament? I saw it on a lunchtime walk while I was at work, and it cracked me up. The reserved parking sign is at a local grocery store. I’ll never use it, thank goodness, but so so happy it exists for those future moms out there! That photo of me is just from my run today. It was a pretty fantastic 5-miler, the first in 8 months. Certainly worthy of celebrating.

The “Be Your Own Kind of Beautiful” sign was at a restaurant where I had lunch with my dear friend and second mom, Sue. I feel like it’s a reminder that I don’t need others to validate who I am. I’m some kind of wonderful, damn it, and need to cut away those that make me feel otherwise.

See that Maine and Pride flag? I saw those flags at a home, that if you grew up here in Maine, you might automatically think those folks were close minded rednecks that would shoot a gay man on sight if they had a chance. The house was a bit run down with many cars and car parts all over the lawn and driveway. And yet they flew that Pride flag high and proud. I actually laughed out loud. I was a bit ashamed of myself for putting those folks in a box where they certainly didn’t belong. I’ve never been so happy to be wrong.

That last photo is of one of my sistas from another mista, Trish, and the FABULOUS author, Steven Rowley. We were fortunate enough to hear him speak about his latest novel. His humor is infectious and he is just bursting with joy. If you’ve ever read “The Guncle,” it’s definitely a reflection of who Rowley is. And if you haven’t read it, I encourage you to go to your local library or bookstore and get it asap. Then pick up the sequel, “The Guncle Abroad”!

Friends, if you’ve never been to Maine before, I encourage you to visit in the month of June. But if you can’t be here right now, I hope it’s lovely wherever you are. And if it isn’t? May you find something to bring you joy this month.

Remember, if you need a fresh start, this is as a good time as any other.

So let’s do it. Let’s begin again. ❤

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May is Mental

Every month is mental health awareness month in our house. How about yours?

Each member of our household is on an antidepressant, two of us are in therapy (although it REALLY should be three) and lately we’ve all been doing our best to take care of ourselves. My son and I joined the gym. (I sell my blood plasma to make a little extra cash, and that cash goes to the gym and the occasional treat or incidental. I know it might sound odd, but it’s kinda cool.) My husband and I have gone on two short walks together, plus he’s actually worked on lowering his blood sugar. I’ve added a few more counseling sessions this month to try and shed the negativity I’ve been feeling about life and the world. Plus I had lunch or a walk with various friends and that always lifts my spirits.

As of two weeks ago, my weight had increased 14 pounds since coming home from Belize. That’s over a pound a week. Of course, our lives were imploding–between my husband having to stop working, trying to figure out how to pay for our lives, watching my kid’s mental health swing up and down and all around, and having the relationship between my husband and I change a bit with the extra caregiver role I need to take on. So…of course I gained a pound a week! I ate every fucking thing I felt–anger, resentment, joy, sadness, frustration. And in case you were wondering, those emotions tasted like peanut butter, chocolate, and margaritas.

But then, finally, warm weather came to Maine. It was staying lighter later. My walks increased, I was still only running once or twice a week, but I was moving more and feeling…hopeful. So I started physical therapy for my hip and leg hoping to stop feeling like I’m 70. I continue to walk or run 5-6 times a week, while listening to a playlist that either reflects what I’m feeling or inspires me to be something or someone I wish I could be.

“Happy” by Pharrell Williams has been a long time favorite of mine. The tune, the lyrics AND the music video, all make me smile and make me move my body. Essentially, it makes me happy for those four minutes. Although it’s not really possible for me, it’s still what I aspire to be much of the day.

“Love Myself” by Hailee Steinfeld and “Rebel Girl” by Bikini Kill represent the women I want to be.

“I’m Still Standing” by Elton John reminds me that through all the challenges in life, I’m still here and doing my best to keep placing one foot in front of the other.

And then there are the songs like “Not OK” by Robert Grace that reflect how I sometimes feel.

But peppered throughout the playlist are songs like “Don’t You Worry” by Black Eyed Peas, Shakira & David Guetta and “It’s Alright” by Mother, Mother. They remind me that more often than not, I’m gonna be ok. I will make mistakes, I will grieve new and old losses, I will be angry at my circumstances, but I will make it through. Because that’s what we do.

Your support and generosity have been the motivation to get my shit together. When so many people love me and have faith that my family can get through this wacky time, then how can I not believe it myself?

So thank you, friends, for cheering me on. You are the absolute best.

GROUP HUG!

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Shame

I write this blog because it helps me sort out my feelings, my thoughts about my life, and to share my experiences with some folks who either can relate or those who care about me. I do not ask for anything but a few minutes of your time if you are so inclined. But my last post brought gifts from some of you. You read my piece and felt for me and my family’s current situation. Your generosity and kindness was and is appreciated, and I am honored to call many of you my friends. I know you did what you did because you love me and the thought of me hurting in any way made you want to help. And I love you for it. I truly do.

But to be honest? I felt tremendously embarrassed and ashamed afterwards. I didn’t share to “get stuff.” I shared just to show this new thing I was experiencing and how frustrating (and humbling) it can be to eat from a food pantry. After the influx of gifts, I was kind of a mess for a few days until I had therapy. When I explained my dilemma to my therapist, she said something pretty dang profound. “Sometimes, Holly, it is our job to receive.”

*mic drop*

That one sentence changed my perspective on these gifts. I ended up using two gift cards for a trip my son and I had planned from last year. (We drove to Washington, D.C. to look at colleges and we needed snacks, friends.) I did refuse a few offers when I was able to, and others? I put some of the gifts aside for a little later when I know we’ll be more desperate than now.

Do you know what’s really disturbing about all of this? When my son and I went to D.C., we stayed with some old friends, who have become part of my family. My dear friend, a woman I’ve known for 30 years, had asked me about these cassava flour brownies that I made. I said that I got the flour from someone, but I could not say the words out loud, “I got it from the food pantry.” (Which, btw, that’s pretty great to get anything gluten-free from a food bank, and this was from our local high school’s food pantry.) I know for a fact that she would never judge me. Not for a second. Yet I was too ashamed and embarrassed to say that I got it from a food pantry. That shame is so deeply ingrained into me. I just want to starting yelling, “I have a good job, a fucking master’s degree, so don’t look down on me!”

But who is actually turning their nose up at me? Is it you? I don’t think so.

I think it’s me.

I shouldn’t be in this situation. I should be helping people that need an extra hand.

I should be you.

But I’m not. And I’m angry about it.

Then today, I brought this walker up from the basement. When my husband was on a respirator and in a coma back in 2020, this was given to him once he was able to leave the hospital. It was necessary then, so we kept it, hoping we wouldn’t need it for years to come. This morning, my husband’s knee was swollen, his neuropathic feet were hurting, and he was having problems standing up from his living room chair. Before I left for work, he asked me to get the walker from the basement. So I did.

On the drive to work, I couldn’t take a deep breath. I knew I was having an anxiety attack. I was thinking about my husband, my son was home sick, I was missing some friends I haven’t been able to talk to, I was feeling alone and scared…but I just needed to get to work. Once there, I pretended all was good until I couldn’t any more. I asked a colleague if they ever had anxiety attacks (I was pretty sure they had) and asked what they did. They sometimes would just go into the bookstacks and center themselves. So before we opened the library, I went to a section of the stacks, sat on the floor, and sobbed. I couldn’t think. I couldn’t speak. I just sobbed and rocked myself. After a few minutes I was able to stand up and go back to work. A different colleague checked on me and we talked for a few minutes and they let me vent and cry some more, and that was the end of it.

When I was a Trevor Project volunteer, I helped many teens get through anxiety or panic attacks. Often I used the 54321 grounding exercise (name 5 things you see, 4 things you can touch, 3 things you can hear, 2 things you can smell, and 1 thing you can taste–the taste thing is always odd). But while my brain is freaking out, I could not name anything I was seeing because everything was a massive blur. Hell, I couldn’t remember the order of seeing, touching, hearing, etc. But today I learned that sometimes being alone to cry, drinking water, taking a brief walk or finding a place nearby to get a good snack, are all good things to help calm me down to a place where I can function again.

Did I feel a bit embarrassed and ashamed for having this mini breakdown? Oh yeah. I see people every day who have no home, who keep every possession they have in a shopping cart, who only eat what is given to them. And I’m crying over a husband who can’t work and a life that I wasn’t expecting?

Well…yes. I am. Do I wish I could suck it up and just get on with whatever life I have? Yes, yes I do. And somedays I do a great job at it.

But today wasn’t one of those days.

You know what, though? Tomorrow is a new day. So there’s always hope that I’ll function tomorrow, that I’ll be able to get up on time, exercise, eat well, and smile more often than not.

That’s my goal.

How about you? Are you ok? No matter what I’m going through, I’m still here to listen. It’s the least I can do for you, like you’ve done for me. ❤