Stress is a Killer

Let me begin by thanking all of you readers and your thoughtful comments and suggestions when it came to my mom and her care. As of 5 days ago, she is finally in a safe place. Unfortunately, it was after an incident where “Jack” had to be asked, by the police, to leave Mom’s house.  This was followed by two weeks of me stopping by every other day, checking on Mom, giving her meds, watching to make sure she ate, and horrible conversations with her about moving somewhere where she could be safe and taken care of.  You can imagine how those went, right? Not good.

After talking with Mom’s nurse and social worker, and having them tell me that it was really ok to lie to Mom and tell her she had an appointment when, in fact, she was moving, I ended up doing just that. The facility Mom has moved to also knew what was happening and they’ve had to do this type of thing before. The move is for the safety of the person. My emotional health was irrelevant but Mom’s safety was the most important thing I had to keep focusing on. And I did.

Once we were inside the facility and the director told Mom she was staying there for a while, Mom first got angry and headed for the door. Eventually she followed us to her room, sat on a bed, put her head in her hands and sobbed.

It was absolutely fucking awful.

In many ways this was worse than in January, when Mom moved to a different facility. Maybe because I was by myself this time? But in other ways I knew in my heart and soul that this was the best we could do. She would be safe from herself and at least one other. She would be eating 3 meals and 2 snacks a day. She would have other people around to talk with and to. And she’s only 25 minutes from where I live and much closer to other members of the family.

After driving back to her home that day and getting many of her things, then visiting a bit with her after placing family photos around her room, I left her in a good space. She was listening to music with other residents and was enjoying herself.  Then on the ride home, I had a sudden pain in my pancreas.

I’ve had pancreatitis twice now and I know what it feels like. I wondered if last year’s bout was stress-induced, and now, I really think it was and is. I didn’t think I internalized my stress. I talk about it, commiserate with those in similar situations, and attempt to exercise most days to relieve my stress. Obviously I’m doing something awful to my body and I have no idea how to handle my stress. So, to avoid going into the hospital, I’ve drastically reduced my food intake. I’ve lost 4 pounds in 4 days. As much as I’d like to lose a little weight, this isn’t the way I wanted to do it.  But it’s worked so far in keeping me out of the hospital. (I really think this might be some bad karma coming into play. I’ve tried to keep my weight down for my entire adulthood, obsessed over it for too many days to count, and now, here I am, losing weight and not really wanting to. It’s like the Gypsy from Stephen King’s Thinner is after me!) Not sure I can keep up with it for many more days, so I’m slowly increasing my food and testing how I feel. This doesn’t mean I’ll stay out of the hospital, but I have hope. I’m also running a mile a day thanks to Runner’s World “Summer Run Streak” challenge and my friend, Sonya. It might not be the wisest thing to do on such little food, but it gets me outside and out of my head for those few minutes. (Make that 12 minutes since I am definitely running slowly.) I’ve also attempted meditating (that helps get me to sleep) and have tried to take LOTS of deep breaths.

 

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Stressed much?

One of the most difficult things about Mom being where she is are the phone calls. Yesterday Mom had such a great day and told me she was “happy” to be there. That was pretty amazing and something I never heard when she was at the other place. And yet at 8:30 this morning I got a phone call from Mom, asking me to pick her up. I told her she needed to stay there. When she asked why, I told her because of her dementia. She then denied she had it. I should have known better. I never should have brought that up and just said she needed to stay for her health for a few days. Today I learned that this is called a “fiblet”. It is a “necessary white lie to redirect loved ones or discourage them from detrimental behavior.” The term “geriatric fiblet” was created at the 2000 World Alzheimer’s Conference. Who knew?

I went back to see Mom this afternoon since she asked me to visit during that awful phone call. I said I would. My husband told me I didn’t need to go. We had already had an eventful day, going to Mom’s house and taking care of a few things there, as well as dealing with the stress of having to meet “Jack” and hand over the cat. But since Mom is only 25 minutes away, I decided that I needed to do it for me. So I did and it was a brief but lovely visit. So tonight I can sleep well (barring no pancreas pain) and not worry.

That is the hope anyway.

 

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Broken

I’ve lost track of how many times I’ve started this post. Maybe I shouldn’t write it if I can’t get my thoughts together, but maybe it will help? I don’t know.

My brother, my big brother, my first friend….Phil….died on July 23. To say that I’m heartbroken or to say that my family is devastated does not seem to really say what we’re feeling. I don’t want to speak for them, but any parent who loses a child, whether 2 months old, 14 years or 49…it’s unspeakable, unfathomable. And my brother-in-law lost his partner of nearly a quarter of a century. My brother was the younger of the pair. How does this man, who was with my brother not only throughout the years but through the past few weeks of pain and uncertainty and thankfully with my brother as he took his last breath…how does this man go on without having Phil there to make him laugh every single day?

How do the rest of us?

If you know me well or if you’ve known me for a long time, you know I looked up (literally and figuratively) to my brother. He was a giant in my life, and being 6’6″, a giant in most people’s lives. He was always naughty, like in a Groucho Marx kind of way. He was incredibly kind, especially to his family and friends. He loved us with everything he had and it showed. I don’t think I realized how good he really was until I saw him with my son.  Watching my brother read to my son or play action figures with him or chase my boy with a squirt gun not only made me happy, but it allowed me to watch another person become completely enamored of my big brother and with good reason.

Phil made us all laugh until we cried. He could find humor in nearly every situation, no matter how dark.  He listened. He was never afraid to be himself and encouraged that in others. Hence the photo.

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He loved to cook. He loved to try funky foods because he knew he would never travel again and that was how he could “vacation” or experience life to the fullest. His music tastes ranged from Weird Al to Adele to show tunes. His taste in books were as varied as his taste in music. He loved Stephen King and other horror writers, but he enjoyed Liane Moriarty, Victor Hugo’s Les Miserables and MAD Magazine.

But he was also a writer. A really good one. I have some stories and poems he wrote years ago, including a story he wrote me for one of my birthdays, that portrays himself as a monkey. Which is perfectly fitting because he had a thing for monkeys. He was finally published a few years ago by Forbidden Fiction with some of his gay erotica stories. And before you start judging, you should read some of it. He always said that his erotica (and most others) were really romance but with a bit of nastiness thrown in. Love, not sex, is the true focus of erotica.

Phil was an amazing human being. And I miss him. But even saying that doesn’t sound right. It’s so much more than missing someone. I’ve had this constant ache in my belly since he died. I’m so tired and I feel heavy and even when I think I’m ok, something will trigger a memory and I’m caught off guard and I’ll let out this quick little sob. I try to hold it back, but what’s the point, really?

My brother is in every room of my house. He was here nearly every week for the past decade, either to visit with us or babysit my boy after school or here for family gatherings. He has a pair of slippers here that I bought just for him after my husband and I bought this house. (His size 16 feet were not easy to buy shoes for.)  There’s a box of Splenda in my cupboard for when he came over for a cup of tea. He has his own profile on my Netflix account. He’s everywhere.

And yesterday, we even scattered some of his ashes around the outside of my home. I wasn’t sure I wanted to do that, but my boy did. He knew right where Uncle should be. And once we scattered a few of Phil’s ashes, my boy said, “I’m never going to wash my hands again.” We squashed that idea immediately, but I knew exactly what he meant. I didn’t want to wash my hands again, either. In fact, I kept rubbing them together, trying to embed some of my brother into my skin. Later in the day, when I started to wash dishes, I realized what I was doing and pulled my hands from the water like I had been burned. I was so mad at myself. I forgot. I fucking forgot. Rationally I knew I had to wash my hands at some point but did it have to be then? Couldn’t I have tried to hold on longer?

But here’s where everything gets *really* difficult.

Life goes on.

How the hell does that happen? Actually, I’m not even asking how right now, but why? Why does it have to? There’s a big chunk of me missing. That person I used to watch the Oscars with, the relative my boy would look forward to seeing each week, that guy I’d talk books and writing with….fuck.

Easter, all of our birthdays, Halloween, Thanksgiving, Christmas. Phil was here for all of those things.

And now he’s not….and I’m just…..