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And I live…

I took the day off to live. The anniversary of Phil’s death requires me to do so. I didn’t go ziplining or travel to Europe, although both are on my bucket list. I did what I had intended to do today. I visited the Farnsworth Art Museum, stopped by the Rockland Public Library, found a kick-ass coffee shop and drank ambrosia (the actual name of the coffee with espresso), people-watched, took a walk in the rain, and cried. Not necessarily in that order.

There were some amazing pieces by Jamie Wyeth, especially the screen door sequence. The last two photos here are of the first in that sequence, along with a description. “In capturing a fleeting moment, Wyeth reminds us that our friends and loved ones may be in our lives only briefly.”

So. Fucking. True.

And yes, I was one of those people who stood in front of a piece of artwork and wept.

So much of Wyeth’s work is quite dark, and I couldn’t help but think, “Man, Phil, you’d love this shit!” There were comparisons to some of his pieces and Hitchcock’s film, “The Birds” (a film I watched with my brother several times) as well as Kubrick’s “The Shining” (also saw with my brother, but only once because he scared the bejezus out of me.)

The Farnsworth not only features the Wyeths’ works, but also a variety of artists. There was this great display of collaborative artwork by students. The pieces that are in blue, one that features the gun with “why why why” all over it was a piece by a high school student, as well as the other bluish piece that had one line that got to me. “My biggest fear is I will be forgotten.” Right now that’s not my biggest fear, but forgetting my brother is.

I’m sure that’s part of the reason why I write about him so much, why I continue to grieve him. He was such a fun and weird and interesting human and I wish everyone I’ve ever known (or never known) could have met him. I need him to live on in some way. And I guess this is my way. Because now it’s 7 damn years without him on this planet, and it’s just…wrong.

So take a moment, and if you ever met Phil, think about him. His laugh, his morbid and off kilter humor, his love of horror films, his love of his family and friends. And if you never had the great pleasure of meeting my big brother, I’ve told you a lot about him. Here are a few photos, too. Just take a few seconds and think about him. Let him live for another few moments, would you?

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Grief Mode

This past weekend, I gathered beach items from my basement and my friend’s shed, picnic items from the depths of our fridge and cupboards, and along with my ailing husband off we went to my favorite state park. I have been waiting for this for weeks! Peaks-Kenny State Park is one of my favorite places in the world. It doesn’t look like much, but the memories I have there begin as a very young child and continue to memories from just two years ago. It’s a special place for me.

One of the best memories (and stories) I have is when I was maybe 5 (?) years old. My mom kept talking about this giant slide and playground at the beach. But my little ears heard “Giant’s slide”, which meant the Giant must live there, right? We drove up to the park, about a 30 or 40 minute drive (I thought it took FOREVER to get there) and as we climbed out of our car, I saw a boulder with a sandwich sitting on it. I ran to it and yelled, “The Giant left his sandwich!” My mother had no clue what the hell I was talking about. Eventually it was sorted out, and it became one of the most adored stories of my childhood.

Once my son was born, we visited this park most summers. I needed to show him where the Giants used to live! It’s a wonderful place to hang at the beach, play on the playground, go for a swim, picnic, and walk the trails. Although I knew my husband couldn’t do many of these things, he could still hang on the beach and we could have a picnic. But…for the very first time in over 45 years of visiting this park, when we got to the entrance we were told the beach was full and either we could wait in line with at least 6 other cars until some folks left, or just leave.

We sat in line for 30 seconds, and then I drove the hell outta there. I was devastated. I was angry. I was so damn sad! It just took SO MUCH to get to this point. I packed the chairs, the umbrella, and the cooler. I made the sandwiches and brought the bag of snacks (and bottle of wine, because come on!). I made sure we had towels and sun block and books. It felt a bit like taking my son when he was a toddler. I had to do everything, but I knew it would all be ok and it would be so fun. At least for me. My husband typically doesn’t walk well anymore and he honestly hates the sun, but he was doing this for me. It’s been the one thing I’ve asked him to do with me this summer that involved being outside. Just the ONE THING.

And that one thing was gone. I was “angry driving” at this point so I pulled over when we had cell service. I asked my husband to look for a beach somewhere near by because I was about to lose my shit. For a change, I didn’t cry. I was too pissed off at the world to do that. I knew if I had to drive home without some sun and swimming, I was going to sob for a long time and eat a carton of ice cream–and not that little pint bullshit but a half gallon.

Now, when I say I wanted to go to the beach, I mean a lakeside beach. We are in central Maine and the thought of driving to the coast on a Saturday in July is basically suicide. We would be one of 10 Maine cars with the hundreds of others all out-of-state vehicles. This is the only time we really have traffic here, and I’ll pass on that!

Amazingly, there was a beach 30 minutes away at Lake Hebron in Monson. I didn’t even realize Monson had a lake! I was still seriously glum, but I figured I had to try. I ate a tiny bag of sweet potato chips to get my blood sugar back up and then I was able to keep going. We joked about what kind of hell we might find at this public beach. “What’ll you do if it’s bad or super crowded?” my husband asked. I told him we’d get our sandwiches from the back and head back towards home, but hit up an ice cream stand before we got there. I was very ready to eat my feelings.

But instead we found this lovely place:

The beach was literally a large strip of dirt and a side patch of grass, along with several picnic tables, a changing hut and a porta potty. But it was just what we needed! There were only 6 people there, and 3 of them were children. The old man and I staked out a little corner of the grass, I went for a swim, we both ate lunch and read our books. And I drank two glasses of peach wine that just improved my mood. It was absolutely delightful.

Once we got home, after a stop at Dairy Queen, my husband wanted to feel useful and brought everything inside in one trip. Did he nearly fall to the ground? Yes. Could he catch his breath? Not at first. Did I yell at him? No, instead I spoke quietly which is typically worse for him. “Look, we just had a really good day, so maybe don’t ruin it by dying today, ok?” He set the bags down, caught his breath and we carried on.

Am I bummed that we didn’t go to Peaks Kenny? Yes. Very much so. I know that if I’m able to get there this summer, it will be by myself. I know I’ll still have a lovely time, but it would still be good to have another person. But I’m happy we took a chance to try out this little beach. We really didn’t have anything to lose at that point, so why not?

And I’m grateful for those few happy hours. You know, I’m sure my husband will live another 5, 7, or maybe even 10 years. But as I saw with my dear brother, nothing is certain. And after watching Phil slowly die over 9 years, I know the signs–the body not able to move well, the breathing difficulties, sometimes even the mind slowing down. I didn’t know the signs at the time, or I chose to ignore them. I didn’t want my brother to die, even though I knew he would long before me.

But Phil tried to squeak out little bits of living as much as he could. He’d buy and eat foods from other countries and regions because it was his way of traveling AND trying something new. He read “Les Miserables” by Victor Hugo because he wanted to make sure he read the 1,400 page novel before he died. He played with his nephew, spent time with his family and partner–he made memories for US.

That’s what I’m trying to do with my husband. We have nearly 30 years of memories, many good and many awful, But why stop there? He’s never been a very outgoing person, but I’m grateful he’s trying to do a few things with me so I have those memories when he dies one day. He might drive me batshit crazy sometimes, but I’ll still miss him when he’s gone.

It might seem morbid to be talking like this when Wal, my husband, could live another decade. But tomorrow is the 7-year anniversary of my brother’s death. I am in full grief mode right now. I feel such a horrid sense of dread and loss.

I’m at my kitchen table writing this, and I just want tomorrow to come so I can leave the house. These are the times I had a she shed to escape to.

Each year on July 23rd, I try to live. I try to live for my brother, to do something I’ve never done. Some years it’s just been trying a new food, other times it’s traveling with my son. But tomorrow? Tomorrow I’m leaving my house early, by myself, and visiting the Farnsworth Art Museum, where I’ve never been. My lovely library has a free pass patrons can use, so I’m taking full advantage of it. Hopefully the rain won’t ruin a nice walk near the ocean, but it’s ok if it does. Walking in the rain can be life affirming sometimes. Or it will make me feel more miserable. And I might like that better.

Hug the people you love, friends. Tell them you love them. This life goes by in a flash.

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End Times

Thursday morning I awoke with an anxiety attack. I don’t know what I had been dreaming, but my first thought was about my son’s ankles and the fact that they’ve been hurting him for a few weeks, shortly after he started playing football. That one thought spiraled into worries about new shoes and getting him a new doctor and worrying about the health of our current doctor and how do I pay for my last medical bill and I hope the food bank has more produce next week because this week was a bust and we really need more vegetables in the house and I need to stop thinking, stop thinking, stop thinking.

Yeah.

Hello, 4:30am.

So I got up, drank coffee, ate half a banana, and took a 4 mile walk while listening to a gloriously smutty romance novel. (Unfortunately Yours by Tessa Bailey–Anything by Bailey is fun and often smutty. Delicious!) My hip was screaming by the end of the walk, but at least I wasn’t concerned about money. The time outside and moving my body was enough to clear my head and make a plan to at least have my son’s ankles wrapped before that day’s football practice. I just refused to worry about the other stuff the rest of the morning. It was just too much to think about. It was just too, too much.

The thing is…life is not horrible. It’s hard for sure. It’s a struggle. It’s scary not knowing…anything really. The political climate of this country does not help matters. My son, my beautiful child, is a political science/government/history junkie and so we tend to read, listen and watch more news than ever before. But I have now had to stop, because I can’t stop freaking the fuck out.

I’m ashamed to say that when I heard there had been an assassination attempt on former President Trump, I was disappointed to hear that it was only an attempt. The anger I have at Trump for installing so many jackasses to the Supreme Court and his party’s disgusting Project 2025 plan, made me hope for his death. And I’m not happy that I had that reaction. There is no place for political violence.

But I have to be honest in how I feel. We’re living in a country where many women no longer have a right to choose what they do to their own bodies, and where librarians and teachers are harassed and called “groomers” for providing access to books that represent children like mine.

This isn’t the same country I was born and raised in. It’s turning into a hateful place, where people no longer feel safe to speak how they feel about a political candidate unless they are in a group of like-minded individuals. And I am speaking about both Republicans and Democrats. As a liberal Democrat living in a small conservative town, I rarely feel comfortable expressing how I feel here. When you see Trump signs or F*ck Biden signs on just about every road, how else should I feel? But I also know of librarians that are Republicans that will not say a word about politics for fear of their colleagues damning them for their views.

You know, I rarely talk about politics publicly. I work in a public library so I keep my mouth shut while at work (except with some colleagues), and at home we do talk about politics but sometimes it’s just too exhausting. It is incredibly difficult to live with someone who disagrees with you politically. So most days we keep it to a minimum. That’s how we’ve remained married for nearly 27 years. Yet our son, who knows more about American history than we do, and is thoughtful and knowledgeable about our current political system, will bring facts and a sense of calm to our family discussions. (Facts and calm to political discussions. Isn’t that something?) I see my son and much of his generation as a beacon of hope. When they are of age to vote and run for office, I hope we will begin to see a change in our world for the better.

And hope is what we need right now. All of us. For a variety of reasons.

You know, I sent this photo to a friend recently who is no longer speaking to me. I’m not sure why they’re not speaking to me, but it may have nothing to do with me. It was a message to let them know that I have hope that our friendship will remain and hope that our lives will get better, but also just to say that I’m still here.

And I am. I’m here. And so are you. And I’m so happy and thankful for that. So let’s get through another night together. I know we can make it through. ❤

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Your Success

Dear Phil,

Happy birthday, big brother. I miss you.

I continue to have conversations with you, but Phil? I’m scared. I’m not sure how you’d reply anymore. There are times when I think I’m forgetting you, forgetting what foods you liked or what you thought was funny and what was just ridiculous. But…it’s been 7 years so maybe your tastes and thoughts would have changed anyway. We all evolve, or hope to, right?

I’ve been watching the latest season of Bridgerton, and often wonder what you’d think about the show. You’d probably watch it since you got me into Downton Abbey, but this is much steamier and more diverse and just plain delicious! There’s gossip and sex and beautiful gowns and manipulation of pop tunes into classical dancing music. One of the latest storylines has a slightly larger than average sized woman as the romantic interest. You know how I love romance stories with larger women! I just watched the sex scene with the woman and her love interest, and yes, she’s rounder than your average actress, but for fuck’s sake! She’s gorgeous, flawless skin, beautiful breasts. Where are the women with back fat?!? I want to see a middle-aged or older actress, with rolls for a stomach, fat thighs and a cottage cheese ass. AND I want to see the man (or another woman, I don’t care) tell her how fucking beautiful she is. THAT is what the world needs to see.

*current rant over*

I can hear you laughing now. Agreeing with me, but laughing. “Calm down, Chuckles.”

Hey, the Bangor Pride Parade is this Saturday. The family is going–the kid and I, Bon, Am & Ky, too. Remember the last one we went to? It’s bigger now. The only thing I remember about that one in 2017 was that we needed a seat for you. You were gonna be there, one way or another, so I got out my lawn chair and my friend, Trish, helped get us settled or helped us leave. I don’t remember which now. I just remember being there with you, then getting grocery store sushi afterwards and eating at my house. Looking back, that was the day you tried to tell me you didn’t have a lot of time left. But I refused to believe it.

Anywho, did I tell you I’ve been going to Planet Fitness recently? I signed up with the boy in early May and I’ve been going faithfully 2-3 times a week. I’m not losing any weight, but I’ve gotten stronger and damn, I’m getting muscles! And talk about muscles?!? The eye candy at this gym is bananas. Plus the wide range of ages and shapes and sizes makes me happy. I don’t feel like a completely weak, old fat ass when I go there.

For my birthday I went out and bought clothes that I couldn’t afford but fit better. I’m sick of trying to fit into clothes that fit me a few years ago. Fuck it. I’m healthy and fit, so I might as well be comfortable and stop squeezing into things that make me feel fatter and more like a sausage than like the woman I am. Don’t you love that it’s taken me 51 years to finally get to the “fuck it” stage? But we both know it’s hard for me to hang onto that. Our self-esteem was always so wrapped up in our weight, both as kids and adults. I’m trying to shed that shit, but it’s not easy. I’ll keep trying though.

I was talking to one of my colleagues about you recently. I was telling her how sometimes I look at your Goodreads account to see what books you read that I haven’t. I want to read more of what you did, yet lately I’m reading mostly romances–straight, gay, lesbian, doesn’t matter. As long as it has good sex scenes and a happy for now (or forever after) ending, then I’m on it. There aren’t enough romances with middle-aged people, though. So many of them are people in their late 20s or early-mid 30s. We need more novels about people in their 50s who want to get laid or have their own happy for now ending. Most books with characters this age are dramatic or depressing. I don’t want a love story. That shit can mean a dead partner at some point. Too much reality. I want a friggin’ romcom with a woman who has the battle scars of a typical middle-aged woman–stretch marks, a possible c-section scar, tattoos, and all the mental and emotional baggage that comes with age. That has all the markings of a good romcom, doesn’t it?

So…I hate ending these letters, you know that, right? But I wanted to tell you something. I’ve told you about the Ralph Waldo Emerson quote that says, “…to know even one life has breathed easier because you have lived. That is to have succeeded!” Much of the rest of the quote is about appreciating beauty and to laugh a lot and all of those other things that we try to do. But I wanted to make sure you know, and I hope, hope, hope you knew, that you were tremendously successful. You made so many of us laugh and feel loved and breathe easier. Honestly? I feel like I haven’t been able to take a breath since you left.

I love you, my favorite brother.

Hugs & sloppy kisses,

Holly

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My Favorite Month

“I wonder what it would be like to live in a world where it was always June.” –L.M. Montgomery

I LOVE June.

I personally think June is one of the best months you can spend in Maine. Summer is just beginning but the temps are in the 70s, low to no humidity. Everything is green, the lupines have bloomed and it’s just fucking gorgeous. It’s the end of the school year and high school graduation for some. Like January, it feels like a time for new beginnings, fresh starts.

Typically it’s an emotional month for me, too. June is not only my birthday month, but my brother’s, too. It’s a time when we would celebrate our birthdays together, along with my dad’s birthday and Father’s Day. This year, though, I’m canceling any kind of birthday celebration with my family. We’re heading to one of our local Pride parades instead. We’ll celebrate Pride together and to me, it’ll feel like we’re celebrating my brother. Which is what I’d rather do.

Will I still celebrate my own birthday? You bet your ass. Like I’ve said in previous posts, I’ve always loved my birthday but have often been disappointed by others in their lack of celebrating my birthday. So fuck ’em. I might not have a road trip planned like last year’s big 5-0, but I’ll do what I want and create my own celebration.

This month, I’ve tried to take time to really see things around me that bring me joy. That Kermit lawn ornament? I saw it on a lunchtime walk while I was at work, and it cracked me up. The reserved parking sign is at a local grocery store. I’ll never use it, thank goodness, but so so happy it exists for those future moms out there! That photo of me is just from my run today. It was a pretty fantastic 5-miler, the first in 8 months. Certainly worthy of celebrating.

The “Be Your Own Kind of Beautiful” sign was at a restaurant where I had lunch with my dear friend and second mom, Sue. I feel like it’s a reminder that I don’t need others to validate who I am. I’m some kind of wonderful, damn it, and need to cut away those that make me feel otherwise.

See that Maine and Pride flag? I saw those flags at a home, that if you grew up here in Maine, you might automatically think those folks were close minded rednecks that would shoot a gay man on sight if they had a chance. The house was a bit run down with many cars and car parts all over the lawn and driveway. And yet they flew that Pride flag high and proud. I actually laughed out loud. I was a bit ashamed of myself for putting those folks in a box where they certainly didn’t belong. I’ve never been so happy to be wrong.

That last photo is of one of my sistas from another mista, Trish, and the FABULOUS author, Steven Rowley. We were fortunate enough to hear him speak about his latest novel. His humor is infectious and he is just bursting with joy. If you’ve ever read “The Guncle,” it’s definitely a reflection of who Rowley is. And if you haven’t read it, I encourage you to go to your local library or bookstore and get it asap. Then pick up the sequel, “The Guncle Abroad”!

Friends, if you’ve never been to Maine before, I encourage you to visit in the month of June. But if you can’t be here right now, I hope it’s lovely wherever you are. And if it isn’t? May you find something to bring you joy this month.

Remember, if you need a fresh start, this is as a good time as any other.

So let’s do it. Let’s begin again. ❤

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May is Mental

Every month is mental health awareness month in our house. How about yours?

Each member of our household is on an antidepressant, two of us are in therapy (although it REALLY should be three) and lately we’ve all been doing our best to take care of ourselves. My son and I joined the gym. (I sell my blood plasma to make a little extra cash, and that cash goes to the gym and the occasional treat or incidental. I know it might sound odd, but it’s kinda cool.) My husband and I have gone on two short walks together, plus he’s actually worked on lowering his blood sugar. I’ve added a few more counseling sessions this month to try and shed the negativity I’ve been feeling about life and the world. Plus I had lunch or a walk with various friends and that always lifts my spirits.

As of two weeks ago, my weight had increased 14 pounds since coming home from Belize. That’s over a pound a week. Of course, our lives were imploding–between my husband having to stop working, trying to figure out how to pay for our lives, watching my kid’s mental health swing up and down and all around, and having the relationship between my husband and I change a bit with the extra caregiver role I need to take on. So…of course I gained a pound a week! I ate every fucking thing I felt–anger, resentment, joy, sadness, frustration. And in case you were wondering, those emotions tasted like peanut butter, chocolate, and margaritas.

But then, finally, warm weather came to Maine. It was staying lighter later. My walks increased, I was still only running once or twice a week, but I was moving more and feeling…hopeful. So I started physical therapy for my hip and leg hoping to stop feeling like I’m 70. I continue to walk or run 5-6 times a week, while listening to a playlist that either reflects what I’m feeling or inspires me to be something or someone I wish I could be.

“Happy” by Pharrell Williams has been a long time favorite of mine. The tune, the lyrics AND the music video, all make me smile and make me move my body. Essentially, it makes me happy for those four minutes. Although it’s not really possible for me, it’s still what I aspire to be much of the day.

“Love Myself” by Hailee Steinfeld and “Rebel Girl” by Bikini Kill represent the women I want to be.

“I’m Still Standing” by Elton John reminds me that through all the challenges in life, I’m still here and doing my best to keep placing one foot in front of the other.

And then there are the songs like “Not OK” by Robert Grace that reflect how I sometimes feel.

But peppered throughout the playlist are songs like “Don’t You Worry” by Black Eyed Peas, Shakira & David Guetta and “It’s Alright” by Mother, Mother. They remind me that more often than not, I’m gonna be ok. I will make mistakes, I will grieve new and old losses, I will be angry at my circumstances, but I will make it through. Because that’s what we do.

Your support and generosity have been the motivation to get my shit together. When so many people love me and have faith that my family can get through this wacky time, then how can I not believe it myself?

So thank you, friends, for cheering me on. You are the absolute best.

GROUP HUG!

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Shame

I write this blog because it helps me sort out my feelings, my thoughts about my life, and to share my experiences with some folks who either can relate or those who care about me. I do not ask for anything but a few minutes of your time if you are so inclined. But my last post brought gifts from some of you. You read my piece and felt for me and my family’s current situation. Your generosity and kindness was and is appreciated, and I am honored to call many of you my friends. I know you did what you did because you love me and the thought of me hurting in any way made you want to help. And I love you for it. I truly do.

But to be honest? I felt tremendously embarrassed and ashamed afterwards. I didn’t share to “get stuff.” I shared just to show this new thing I was experiencing and how frustrating (and humbling) it can be to eat from a food pantry. After the influx of gifts, I was kind of a mess for a few days until I had therapy. When I explained my dilemma to my therapist, she said something pretty dang profound. “Sometimes, Holly, it is our job to receive.”

*mic drop*

That one sentence changed my perspective on these gifts. I ended up using two gift cards for a trip my son and I had planned from last year. (We drove to Washington, D.C. to look at colleges and we needed snacks, friends.) I did refuse a few offers when I was able to, and others? I put some of the gifts aside for a little later when I know we’ll be more desperate than now.

Do you know what’s really disturbing about all of this? When my son and I went to D.C., we stayed with some old friends, who have become part of my family. My dear friend, a woman I’ve known for 30 years, had asked me about these cassava flour brownies that I made. I said that I got the flour from someone, but I could not say the words out loud, “I got it from the food pantry.” (Which, btw, that’s pretty great to get anything gluten-free from a food bank, and this was from our local high school’s food pantry.) I know for a fact that she would never judge me. Not for a second. Yet I was too ashamed and embarrassed to say that I got it from a food pantry. That shame is so deeply ingrained into me. I just want to starting yelling, “I have a good job, a fucking master’s degree, so don’t look down on me!”

But who is actually turning their nose up at me? Is it you? I don’t think so.

I think it’s me.

I shouldn’t be in this situation. I should be helping people that need an extra hand.

I should be you.

But I’m not. And I’m angry about it.

Then today, I brought this walker up from the basement. When my husband was on a respirator and in a coma back in 2020, this was given to him once he was able to leave the hospital. It was necessary then, so we kept it, hoping we wouldn’t need it for years to come. This morning, my husband’s knee was swollen, his neuropathic feet were hurting, and he was having problems standing up from his living room chair. Before I left for work, he asked me to get the walker from the basement. So I did.

On the drive to work, I couldn’t take a deep breath. I knew I was having an anxiety attack. I was thinking about my husband, my son was home sick, I was missing some friends I haven’t been able to talk to, I was feeling alone and scared…but I just needed to get to work. Once there, I pretended all was good until I couldn’t any more. I asked a colleague if they ever had anxiety attacks (I was pretty sure they had) and asked what they did. They sometimes would just go into the bookstacks and center themselves. So before we opened the library, I went to a section of the stacks, sat on the floor, and sobbed. I couldn’t think. I couldn’t speak. I just sobbed and rocked myself. After a few minutes I was able to stand up and go back to work. A different colleague checked on me and we talked for a few minutes and they let me vent and cry some more, and that was the end of it.

When I was a Trevor Project volunteer, I helped many teens get through anxiety or panic attacks. Often I used the 54321 grounding exercise (name 5 things you see, 4 things you can touch, 3 things you can hear, 2 things you can smell, and 1 thing you can taste–the taste thing is always odd). But while my brain is freaking out, I could not name anything I was seeing because everything was a massive blur. Hell, I couldn’t remember the order of seeing, touching, hearing, etc. But today I learned that sometimes being alone to cry, drinking water, taking a brief walk or finding a place nearby to get a good snack, are all good things to help calm me down to a place where I can function again.

Did I feel a bit embarrassed and ashamed for having this mini breakdown? Oh yeah. I see people every day who have no home, who keep every possession they have in a shopping cart, who only eat what is given to them. And I’m crying over a husband who can’t work and a life that I wasn’t expecting?

Well…yes. I am. Do I wish I could suck it up and just get on with whatever life I have? Yes, yes I do. And somedays I do a great job at it.

But today wasn’t one of those days.

You know what, though? Tomorrow is a new day. So there’s always hope that I’ll function tomorrow, that I’ll be able to get up on time, exercise, eat well, and smile more often than not.

That’s my goal.

How about you? Are you ok? No matter what I’m going through, I’m still here to listen. It’s the least I can do for you, like you’ve done for me. ❤

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Having Enough

Years ago, when my son was a toddler, we were on food stamps and WIC for a short period of time after my husband had been laid off. (If you’re not aware, WIC stands for Women, Infants & Children and is a federally funded supplemental nutrition program for low-income pregnant women and children.) My husband’s unemployment had run out, he was depressed, and he couldn’t find a job. It was a horribly scary time.

Yet even with that kind of stress at home, what really made it unbearable for me, was how I was treated at the grocery store when I used WIC. There was an older woman at the grocery store in the town I worked in, she waited on me and made me feel like absolute garbage. She scoffed when she saw my WIC paperwork, yelled at me when I had something on the counter I wasn’t allowed to get through WIC, and never once looked me in the eye.

I felt humiliated.

I left the store in tears, holding the bag of the few items my child needed to keep growing and thriving. The next time I used WIC, I didn’t go back to that grocery store, but went to a larger one near my home. It was a little better, but not by much. The clerk was closer to my age (I was in my mid-30s at this time), but she was efficient, did what she needed to do, and finished the transaction. There were no extra niceties, but at least she didn’t degrade me.

Now here we are, 15 years later. My son is still a growing boy, but a teenager. My husband is out of work and will be permanently. Although the disability paperwork has been filed, he will not have an income for 1-3 years. There is no WIC or food stamps for us, because in the eyes of the government, I make too much money.

So what do we do? Each day when I go home from work, I pass a local church that has a food bank every Tuesday morning. My husband and I had talked about it, and we both knew how fucking hard this would be. You work your whole life, you try to help others, but when it’s time to go for and accept assistance, it felt…wrong.

The morning he was going to go to the church for the first time, I said to him, “Remember, you’re doing this for your family. You’re doing this because our kid, god help us, is still growing. We are going to survive, damn it, and this is how we do it.” He kept nodding his head, “I know. I know.”

And off he went. I’m sure every food bank has their process and I know each one has slightly different rules. This one is in our town, but many folks who go are not from our town. They drive in from other places, but that’s how they survive. Each person or household is given a box to fill, but you can still only take as much as you need for the number of people in your home. For instance, he picked out 3 potatoes the first visit and 3 oranges, because we have 3 people. It’s been quite a humbling experience for all of us, but especially for my husband.

Each week the items are different, and you have to pick numbers to see how far down the line you are. If you get a low number, you have the better choice of produce or any of the goods. If you have a higher number, it’s often slim pickings by then. But it’s fair.

What’s interesting is the choice of items. This past week there was sliced swiss cheese with the expiration date of that day and yogurt a week past the expiration date. Usually the produce is about to go bad or you might have a few days to eat it. But so far, we’ve made sure nothing has actually gone bad. We’re trying to be creative with whatever food he brings home. He’s made hash browns with a few potatoes or sliced and baked them until they’re like potato chips. We’ve received spring mix a few times and have placed greens in nearly everything to make sure it’s eaten. I feel like I’m living in that commercial with chefs who cook gourmet dishes with food scraps…except without the chefs. We’re not making anything fancy, but we’re trying to make meals and not get sick from them. (I’m not gonna lie, the swiss cheese did taste a little odd, but I figured swiss cheese tastes a little weird anyway so it’s fine!)

But one thing that was seriously sweet about last week’s haul, was this rose. I guess the church gave it to my husband to give to me. I don’t know why, but I don’t care. I kinda love it. I’m not typically one who likes to receive flowers, but honestly, it was just nice to get something….lovely. Something that could brighten my day, even for a moment.

Someday, I hope we’ll get to the other side of this. I’m not sure what kind of shape we’ll be in financially by then, but I’m really trying to find ways of cutting costs. I make my own laundry detergent now, we switched from regular cat litter to these pellets that barns typically use, and I’m always scouring my basement to look for things to sell. This isn’t where I thought we’d be at this age, but shit happens, right?

One thing I know is that if we ever do get to the other side of this…no. WHEN we get to the other side of this, we will donate money or resources to local food banks. Even if some of the food items are a little sketchy, we still accept it with great gratitude. They are truly saving our bacon.

Eat well, my friends, and as always, hugs to you. ❤

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Dreams (and Nightmares) Do Come True

It actually happened.

Two weeks ago, I went on vacation with 4 of my favorite humans. To say we had the time of our lives was an understatement. When you laugh so hard each night that you cry and have a belly ache, you know you are surrounded by people that you not only love, but love spending time with.

We traveled to Belize and had the most amazing time. I can truly say it was the best five days of my life. Things at home were not wonderful while I was gone, but I had to keep telling myself that I just needed to let it go. Mostly I did.

Here are some highlights: saw numerous creatures at the Belize Zoo, including spider monkeys (where I cried because I felt like my brother was there, feeling just as excited to be so close to these lovelies); had a beach day where we all swam in the warm water, drank margaritas on the beach, and played cornhole in our bathing suits; went to the Xunantunich Mayan Ruins with a very informed and funny guide, climbed the massive structure and saw lizards and bats along the way; experienced cave tubing; visited a cacao farm and had a hand in making chocolate; swam under the waterfalls; had a massage (thanks, Trish!); ate delicious dishes and fresh fruit each day; heard and saw so many different types of birds that I’ve never seen or heard before; swam in the pool; went for a run; shopped a little; tried to speak Spanish a teensy bit; and drank and laughed each night.

There are hundreds of more photos that I get to look at each day. I did not take a ton (maybe 100), but thanks to my friends, we had over 500 (probably much more) to look at and do what we want with. Many of the ones I haven’t shared are all of us hanging out at the pool on our last full day in Belize. Looking at photos from that afternoon just gives me such good feelings. We were warm and our bellies full and we were enjoying the water and each other’s company. Hell, that was really every day of the vacation.

I know how lucky I am to have been able to travel to another country, to take a vacation, to spend it with my friends. I know how lucky I am to have these friends (and many others) that I have known for most of my life–over 35 years–and still love them and call them my family. They bring me joy and so much damn laughter.

I knew that when I came back from this dream vacation, I would need to hold onto the memories because life at home was and is hard. I cried the day before we left Belize. I knew that my life wasn’t going to feel this carefree and fun for a very long time.

My husband was not able to work while I was away and is now no longer working at all. Between congestive heart failure and now the neuropathy in his feet due to diabetes, there is no other way around it. Our health insurance ends this month and I will start paying for insurance that isn’t as good through my work, but at least it’s something. We will lose our doctor, our favorite doctor we’ve had for years, because he doesn’t take this new insurance. And now we’ve contracted with a lawyer to help my husband apply for disability. If all goes well, he might be able to receive SSDI (Social Security Disability Insurance)–the thing we’ve been paying for all of our lives–in a year…or two…or three.

We, in short, are all grieving so many things this week.

I’ll be able to look on the bright side of things tomorrow. Or maybe it’ll have to wait another day. Either way, I did have Belize. For that, I will be forever grateful.

Take care of each other, friends. I appreciate you.

Hugs to you all. ❤

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Breaking It Down

In another week, I hope to be hanging with four of my girlfriends in our rented villa in Belize. Sounds absolutely amazing, doesn’t it?!?

I just NEED to get there.

Today my husband and I spent over 4 hours in the emergency room. After three days of high blood pressure and heart palpitations, our doc said it’s best we go to the ER since they can do tests and get results today, compared to doing tests at his office and waiting two days.

But that’s not what happened. When we walked in, we were warned that their computer system was down and no idea when it would be brought back up. We figured we’d stay anyways because they could still do tests…unless you get a medical professional that doesn’t think you need any.

Three hours after we stepped through the doors, my husband is finally seen. Unbelievably, his blood pressure was actually normal at that time. The PA couldn’t see my husband’s records, but knew he had congestive heart failure. He said he might do some tests if he can look into his records. BUT HE COULDN’T, SO WHY BOTHER TO STRING US ALONG?

An hour later, I told my husband we should leave. They were working on discharge papers but weren’t sure how long it would take. I was done. I was angry at the PA, angry at my husband, angry at the world. So we left.

Once we got home, we sat in our driveway and I just cried. I let it all out. I told him how disappointing it is to have to do everything at home (cook, clean, laundry) even though I know he often feels like garbage. But when I get home after a long day and he’s been home, can’t the dishwasher be emptied at least? But I also told him how frustrating dealing with his health is, how we should just pull the pin on this disability thing and he should downgrade to part-time work. We’ll lose our insurance and try to get something in Marketplace we can afford. But it’s all so fucking scary and rage-inducing. We should be in a much better place in our lives, but instead we’re still fucking struggling like we did 25 years ago.

And yet between sobs, I told him I feel guilty of living my life and traveling with my friends, while he stays home, barely living at all. But he told me that he wants me to keep living and traveling, because that’s what I want to do and should keep doing it.

But…our lives include things like this in the shower. (Which, I’m not gonna lie, I hate. I feel like I don’t fit in our shower now, and I feel like the handle is just in my way. Isn’t that the most fucking selfish thing anyone has ever thought?!?) I also ordered husband a cane that should be here this week. It all feels just so…unfair and overwhelming and just plain shitty.

Ten minutes ago I completely melted down by the tremendously overwhelming task of…making my lunch for tomorrow. It’s a salad for fuck’s sake, and I dissolved into a sobbing mess at the thought of trying to cut up chicken to put into it. I alternate between sitting at my kitchen table and typing this, to laying my head down in front of my laptop. It’s really not a pretty sight.

So…I’m listening to ocean waves and trying not to spiral and overthink our future. I’m going to envision the best-case, worst-case and most likely scenario of what the next few years will be. Best-case? My husband’s health stabilizes enough that he can work full-time for now and we keep our insurance. Worst-case scenario? He stops working all together and is denied disability over and over. We not only lose our insurance (and our doctor because he doesn’t take any other insurance now) but must sell our home and move into a small apartment. Or…my husband dies.

Most-likely scenario? I think it’s in between. I am hoping my husband can work part-time. Yes, we’d lose this insurance, but I know we can find something on Marketplace. I think it would be more than what we want to pay (or rather *should* pay), but I’m not sure there’s much we can do about that.

I made Husband promise to not die this week or next week while I’m on vacation. I guess now I just keep on moving forward, right? I know how lucky I am to be able to take this trip with four of my favorite people. Do I wish I wouldn’t have to worry about what was happening at home? Of course. But…I just have to do this. I need a break from my life and I swear, I do know how fortunate I am to get that.

So I’m going to take that break. And I’m going to hope for the best. And when I get home? I’ll keep moving one foot in front of the other and gather forces to try and navigate our current circumstances. We’ll figure it out, right? 

Hugs to all of you. ❤